Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 04-14-2010, 09:54 AM #1
Kakimbo Kakimbo is offline
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Default Warm climate and RSD

Hi all.

I just got back from ten days in the Gulf Stream of Florida. It was 85 and sunny each day. Came back to MD to rain and a temp of 60. While in FL I was like a different person. I laid on the beach and sucked in the sun like it was a drug. I didn't hurt. I didn't need as many pain meds and I was HAPPY! Not only did the sun easy my hurts, but also eased my mind. I am amazed at the difference the warm tropical air helped me so.

We all get so worn down from this beast, along with our everyday worries. I had a horrible time getting through this winter. I have always loved cold weather and snow; but this year got the best of me. It was very healing for me to just lie back and soak it in. I hope for all my friends here we can all find a "warm place" to retreat to when life gets too hard.

Thinking and praying for each of you.

Kim
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Old 04-14-2010, 12:15 PM #2
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Hi Kim,
I am happy you had at least a bit of relief from this beast as you say. I live in NE PA and found this winter to be brutal too and the rain with this spring has not been much better either. I know that when you are near the beach there are different ions (things in the air I believe is what it is) than if you live inland. That is why we always feel better when near a body of water. Cool huh! Hopefully, now you will be feeling better since there will be no more snow for several months. Thank God. It was a crazy winter for sure. Take care,
kathy d
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Old 04-14-2010, 12:38 PM #3
Jimking Jimking is offline
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When the barometer drops my wife Suzy's RSD flares every time. kim ames, you are near the Chesapeake do you feel any different or the Atlantic Ocean?
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Old 04-14-2010, 01:19 PM #4
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Default Hi Kim,

This past winter has been the longest winter I've seen and I'm hearing everyone I know say it got the best of them too. We had a long snowy winter.

I actually do better in cold weather. I hurt more in hot weather. I get very uncomfortable in hot weather then go into a flare.

I am glad you got some relief in Florida. Laying in the sun sound good to me. I am going to try it this summer if I can stand the heat.

Ada
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Old 04-14-2010, 02:24 PM #5
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Kim I'm glad you had such a nice vacation - that sounds heavenly!! Welcome back, we missed you!!

I also LOVE the warmth and the sun on the beach, but what gets me is the howling wind. It hurts my head and my face and my shoulder. I grew up on the beach in South Jersey in the summers, its one of my favorite places. Unfortunately, when the wind is hooting, which is often, I can't tolerate it with my RSD. Which has been such a bummer. I also haven't been able to lie back in a beach chair because of the RSD in the back of my head.

I hope that all that will change after next week when I get my first ketamine infusions.

XOXOX Sandy

Last edited by SandyRI; 04-15-2010 at 07:59 AM. Reason: Added content
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Old 04-14-2010, 04:02 PM #6
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I am a sun lover too. HOWEVER I lived and the coast of SOUTH Florida when I mysteriously came down wiyh RSD. The climate did nothing to relieve the pain. We had to move back to Louisvolle,Ky due to my illnes and returned to Fla. for 5 week vacation this past winter. I did feel good there and only had 1 flare where i burned like the fire-breathing dragon. So even tho the sun feels good,i am not convinced that it helps RSD permanently,since mine STARTED in Florida. Who knows with this monster-lol. Fondly-Carol
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Old 04-14-2010, 05:39 PM #7
Lisa in Ohio Lisa in Ohio is offline
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I too, always feel better at the ocean. So glad to here of your pain relief. You are certainly right about this winter being brutal, it caused me all kinds of problems along with a hard fall on the ice. Left my dignity in the middle of Main Street!! Peace to you, Lisa
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Old 04-14-2010, 08:07 PM #8
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Smile You were missed!!!

Hi Kim, you know last night in my prayer time, when I came to your name I thought...where has Kim been. Well, now I know, did you do any fishing? I do agree soaking up the sun is incredible for the body, it is better than a full body heating pad. I bet you feel great! I am so glad you enjoyed your vacation and was able to relieve your pain too. Last year my husband was transferred to Mississippi, (we live in Michigan), big difference. I was able to go and stay with him for a few months. Wonderful, pain was low, meds were low, I was in awe of the beauty of life again without all of the agony. So glad you are back I have missed your threads.

God Bless Jeanie
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Old 04-14-2010, 08:13 PM #9
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Quote:
Originally Posted by Wilbyfree View Post
Hi Kim, you know last night in my prayer time, when I came to your name I thought...where has Kim been. Well, now I know, did you do any fishing? I do agree soaking up the sun is incredible for the body, it is better than a full body heating pad. I bet you feel great! I am so glad you enjoyed your vacation and was able to relieve your pain too. Last year my husband was transferred to Mississippi, (we live in Michigan), big difference. I was able to go and stay with him for a few months. Wonderful, pain was low, meds were low, I was in awe of the beauty of life again without all of the agony. So glad you are back I have missed your threads.

God Bless Jeanie
Kim..SO happy to have you back..Can we catch the sun on my mountain?? First we'ze gotta fgure out how we get up there..check.maybe an elevator in the back!!

Nice to hear from you...

Kathy
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Old 04-14-2010, 09:32 PM #10
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YES Sun is like a drug!!!!!!!!!!!!!!!!!!!! it is the best therapy in the world.I live in Los Angeles, and whenever we get rainy cold weather I die... Sunny weather I am like an energizer bunny!!!
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