Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 04-16-2010, 09:40 PM #1
watsonsh watsonsh is offline
Grand Magnate
 
Join Date: Dec 2006
Posts: 4,642
15 yr Member
watsonsh watsonsh is offline
Grand Magnate
 
Join Date: Dec 2006
Posts: 4,642
15 yr Member
Default Hi All,

Well I thought I would join in. For now, two docs here in So Cal have dx'd possible RSD in left shoulder. Been reading for a couple of weeks. Actually going to go see fmichael's doc for another opinion.

Had a frozen shoulder for two years during which i also fell on and jammed. Got an injection a year ago and the overreaction in the area of the shot was incredible. Looks like they think the shoulder has developed RSD. Unfortunatley it also looks like there is an impinged nerve in the shoulder which could be contributing. THey would need to do surgery on it. And apparetly not many ortho's do this surgery becasue its rare to have this nerve impinged. But leave it to me to be complicated.

Had a stellate, suprascap and axillary block this week Wednesday.

We shall see.
watsonsh is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Jomar (04-16-2010)

advertisement
Old 04-16-2010, 10:52 PM #2
Jomar's Avatar
Jomar Jomar is offline
Co-Administrator
Community Support Team
 
Join Date: Aug 2006
Posts: 27,687
15 yr Member
Jomar Jomar is offline
Co-Administrator
Community Support Team
Jomar's Avatar
 
Join Date: Aug 2006
Posts: 27,687
15 yr Member
Default

Oh Shelley....

I wonder if they have done studies on the % of TOS patients that end up with RSD also....
__________________
Search NT -
.
Jomar is offline   Reply With QuoteReply With Quote
Old 04-17-2010, 01:19 AM #3
finz finz is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,804
15 yr Member
finz finz is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,804
15 yr Member
Default

There are enough of us here ........We could be a study !

Sorry you've joined the RSD club Shelley. I hope this new doc has something to help you.
finz is offline   Reply With QuoteReply With Quote
Old 04-17-2010, 07:00 AM #4
keep smilin keep smilin is offline
Member
 
Join Date: Aug 2009
Posts: 851
10 yr Member
keep smilin keep smilin is offline
Member
 
Join Date: Aug 2009
Posts: 851
10 yr Member
Confused

Quote:
Originally Posted by Jo*mar View Post
Oh Shelley....

I wonder if they have done studies on the % of TOS patients that end up with RSD also....

I have wondered the same thing as I had TOS due to a car accident in1988..Two years after the accident I had to have both of my first ribs bilaertially removed..due to impigenment AND during both sugeries my thoraxic Dr. cut my sympathetic neve in my chest. He felt it was in protocol of the surgery..Now 20+ yrs. after I have RSD...I have asked countless times, even Dr. S in Pa. if that could have contributed to my RSD he said possibly..
Interesting!!!!

Hugz, Kathy
keep smilin is offline   Reply With QuoteReply With Quote
Old 04-17-2010, 08:34 AM #5
dreambeliever128's Avatar
dreambeliever128 dreambeliever128 is offline
Magnate
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
dreambeliever128 dreambeliever128 is offline
Magnate
dreambeliever128's Avatar
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
Default Hi Shelly,

Have you thought about maybe having some PT to try and stretch the area to get some room in there. If you have to have surgery ask the Anesteolgist for a block.

Jo, I do believe I had RSD with my TOS before any surgery was done.

Ada
dreambeliever128 is offline   Reply With QuoteReply With Quote
Old 04-17-2010, 10:36 AM #6
daniella daniella is offline
Magnate
 
Join Date: May 2007
Posts: 2,998
15 yr Member
daniella daniella is offline
Magnate
 
Join Date: May 2007
Posts: 2,998
15 yr Member
Default

Hi I am so sorry. I am glad you are getting another opinion. I'm big on those. Hope you feel better
daniella is offline   Reply With QuoteReply With Quote
Old 04-17-2010, 07:44 PM #7
watsonsh watsonsh is offline
Grand Magnate
 
Join Date: Dec 2006
Posts: 4,642
15 yr Member
watsonsh watsonsh is offline
Grand Magnate
 
Join Date: Dec 2006
Posts: 4,642
15 yr Member
Default

Thank you everyone, appreciate the support.
watsonsh is offline   Reply With QuoteReply With Quote
Old 04-19-2010, 12:23 AM #8
loretta loretta is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,090
15 yr Member
loretta loretta is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,090
15 yr Member
Default

Quote:
Originally Posted by Shelley View Post
Well I thought I would join in. For now, two docs here in So Cal have dx'd possible RSD in left shoulder. Been reading for a couple of weeks. Actually going to go see fmichael's doc for another opinion.

Had a frozen shoulder for two years during which i also fell on and jammed. Got an injection a year ago and the overreaction in the area of the shot was incredible. Looks like they think the shoulder has developed RSD. Unfortunatley it also looks like there is an impinged nerve in the shoulder which could be contributing. THey would need to do surgery on it. And apparetly not many ortho's do this surgery becasue its rare to have this nerve impinged. But leave it to me to be complicated.

Had a stellate, suprascap and axillary block this week Wednesday.

We shall see.
Hi Shelley, My RSD began right after a breast biopsy-frozen shoulder. Went immediately into physical therapy and massage therapy. After 50, this ortho surgeon wanted to operate, but I said no. Another 50 and had full use of shoulder/arm. They said it might go to other shoulder. We moved from Oregon to Arizona and after a year, it did move. back to therapy and full remission. While water skiing, got frozen hand-misdiagnosed with RA. Went back to Oregon for sports injury doc and the hand ortho diagnosed rsd in 1 minute. nuclear med test confirmed.
If you go to rsdrx.com and go to puzzles. Dr. Hooshmand in Florida practice 40 years on rsd. Go to #75 puzzle-it's really a question with his answer. Any form of invasive treatment is frowned on in the RSD community.
RSD used to be called hand shoulder syndrome.
I hope good report on your Dr. trip. Your friend, loretta
loretta is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 08:22 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.