Help me - outbreak now

bobinjeffmo · 05-23-2010, 10:46 AM

When I'm going through a "crazies" the first thing I go running for is a cold wet towel. Might sound stupid, but while ice packs can cool down the area that hurts, I've found that you also need to dissipate the heat off hence the freezing drenched towel actually steams when I'm using them.

Living in the desert also makes a bit harder I think. When I lived out in souther CA and AZ, it was only by keeping the A/C down in the low 70's where I found much relief, but wow does it hurt the wallet. Living where there's perfect weather can have its drawbacks and with RSD heat is a chronic battle. Best of luck, Bob.

Quote:

Originally Posted by tshadow

I have neuro TOS and sometimes the RSD comes out.

I live out in the CA desert (by Palm Springs) and the heat is coming, the weather is going from mild now to summer.

Just tonight the RSD flared up on my arms.

What do you all suggest to do (drugs, topicals) for RSD when it first flares out? Do any of you have any control over your RSD?

thanks.

Jomar · 05-23-2010, 12:08 PM

Quote:

Originally Posted by hope4thebest

Hi Tshadow,

Why oh why did your pain management doc present it that way in his report! Have you been able to actually see the report and ask him to explain? I suppose if he offered a modified report, his future credibility would be on the line...

I just read the part above that I bolded - and wondered if there was a typo in the drs report?

or he could re-write if he chooses too ...and say that typo was the problem.???

But I agree, you need to see exactly what was written first before confronting the dr.

I would want to know if it was me.

loretta · 05-23-2010, 11:37 PM

Quote:

Originally Posted by hope4thebest

Hi Tshadow,
This is a casic example of some insurances, in this case WC, taking a fact and twisting it, manipulating it, taking it out of context, to snag an opportunity to save some bucks on meds at the expense of someone's health and well being.....Grrrrrrrrr.
Why oh why did your pain management doc present it that way in his report! Have you been able to actually see the report and ask him to explain? I suppose if he offered a modified report, his future credibility would be on the line...
I'm sorry you have to endure this and I hope it's resolved soon..
hugs from Hope4thebest

Dear Loretta,I am so sorry you had a meltdown this morning..it is such a strain to try and maintain optimism and bear the pain and the changed lives that RSD brings.
You always offer kind words and support to everyone..dear friend, I hope the meltdown was a way to help you vent, as we all must do from time to time, to keep in balance...I hope you are feeling better tonight with all my heart..
Thinking of you,
Hope4thebest xox

Hi Hope4thebest, Thank you for your kind words. I did have a meltdown from pain and feeling overwhelmed. We are in the process of moving. We bought a home about half the size we are in and one level. My husband had he remodeled completely. Our home we are in sold just as we were finishing the remodel on the home. But it isn't closing till July. So that is great, as I am just boxing a little at a time. The small things, my husband takes over and I put away. Some days we do nothing. We have movers coming that will move all the big stuff. I am so thankful we aren't rushed.
Things are better, I just get those once in a while, I went to two new Drs. on the internal RSD and had a terrible meltdown seeing the kind compassionate 2nd Dr. She is trying to work with compounding pharmacist on a cream to ease the burning.
Hope you as well are feeling well tonight. Always enjoy your posts. Thank you, your friend,loretta with big hugs

olecyn · 05-24-2010, 10:47 AM

Bob,
What you just wrote I ditto that. Whever I have a shut down or a flare up I automatically drink ice cool water and deep freeze my system. The prickly pain goes away when I cool down the system. My internal thermometer loves the cool as it was accustom to it when injury happened.

Realizing you and I can tolerate cold but many other RSDers cannot. It just depends on their personal systems of what they can tolerate.

Quote:

Originally Posted by bobinjeffmo

When I'm going through a "crazies" the first thing I go running for is a cold wet towel. Might sound stupid, but while ice packs can cool down the area that hurts, I've found that you also need to dissipate the heat off hence the freezing drenched towel actually steams when I'm using them.

Living in the desert also makes a bit harder I think. When I lived out in souther CA and AZ, it was only by keeping the A/C down in the low 70's where I found much relief, but wow does it hurt the wallet. Living where there's perfect weather can have its drawbacks and with RSD heat is a chronic battle. Best of luck, Bob.

loretta · 05-24-2010, 01:25 PM

Quote:

Originally Posted by Lisa in Ohio

Loretta and TShadow, I am so sorry to hear this. They tell us to manage our pain, then do not like it when we do. It seems like there is not much pain relief out there for us. I had to go to the er once on the doctor's orders ( he told me if I didn't show up there in an hour, he was sending an ambulance) and even though they knew I was coming in, treated me terrible and did nothing for my pain. I eventually walked out and that got their attention. I hope today is better for both of you, Lisa

Lisa, I'm sorry your aren't getting proper pain relief. I went to hospital in an ambulance (after passing out for hour and half) and of course seen right away-admitted for several days. In fact the paramedic told my husband I was dead. NOT YET-i say. A couple of years later. my husband drove me to hospital and waited several hours-I laid down in car and he waited inside for my name to be called. After several hours and them saying it would be a while longer, we drove away. Absolutely ridiculous. It seems the only way to get immediate help is to arrive in ambulance.
Sorry this happend to you. How did you get RDS? Has it spread?
I'm 62 and had it 15 years. spread full body and internal.Mine followed breast biopsy. I'm thankfully mobile, except one hand is 50% range of motion.
I'm grateful for you you friends here-the support and understand keeps me sane. Thank you everyone. your friend, loretta with big hugs

SandyRI · 05-24-2010, 08:12 PM

Dear Loretta,

Sorry to read that you have been having a tough time lately. Bummer. I thought I saw that you were on here less than usual - I missed you, as I'm sure many others did also. You are one of our "rocks." Please know that I care and will be keeping you in my prayers.

XOXOXO Sandy

Quote:

Originally Posted by loretta

Lisa, I'm sorry your aren't getting proper pain relief. I went to hospital in an ambulance (after passing out for hour and half) and of course seen right away-admitted for several days. In fact the paramedic told my husband I was dead. NOT YET-i say. A couple of years later. my husband drove me to hospital and waited several hours-I laid down in car and he waited inside for my name to be called. After several hours and them saying it would be a while longer, we drove away. Absolutely ridiculous. It seems the only way to get immediate help is to arrive in ambulance.
Sorry this happend to you. How did you get RDS? Has it spread?
I'm 62 and had it 15 years. spread full body and internal.Mine followed breast biopsy. I'm thankfully mobile, except one hand is 50% range of motion.
I'm grateful for you you friends here-the support and understand keeps me sane. Thank you everyone. your friend, loretta with big hugs

fmichael · 05-24-2010, 09:03 PM

Quote:

Originally Posted by SandyRI

Dear Loretta,

Sorry to read that you have been having a tough time lately. Bummer. I thought I saw that you were on here less than usual - I missed you, as I'm sure many others did also. You are one of our "rocks." Please know that I care and will be keeping you in my prayers.

XOXOXO Sandy

me too,

Mike

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