Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 05-29-2010, 08:22 PM #6
kladams86 kladams86 is offline
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Join Date: May 2010
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kladams86 kladams86 is offline
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Join Date: May 2010
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Quote:
Originally Posted by ElyseHart View Post
I am happy to see this thread because I have been miserable for the past six weeks with my RSD symptoms and I am now wondering if diet can make any difference. I was just researching caffeine this morning because as my husband pointed out, I consume a minimum of a pot of coffee per day, if not more. I crave it and it keeps me from eating a lot of food in between meals. Since my activity level is so much less, I thought it would be a benefit to help cut the calories. But now I wonder if it is making me hurt. I hurt so badly at night I could just jump through my skin. It seems to start every night after dinner, once I relax on the couch and prop up my arm. Then the pain and ache start in my feet, ankles, hips and shoulders. I thought this was weird because I have the RSD in my left arm and shoulder, not my legs (yet).

I hope others chime in on this. I think I will buy some decaf today to start weaning down from the caffeine. I was reading about how it affects the CNS, which is what I am trying to calm down.

Elyse

Hi Elyse,

I have to drink decaf only, as it makes my pain a lot worse. I use to drink a lot of coffee, and then decided to cut it out and see if it would decrease my pain. Although I felt miserable psychologically from the fact that I wasn't getting the caffiene, my pain went down significantly.
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