[sos51]

I had a new cervical MRI on Monday, and got an almost panicked call from my doctor, who wants me to see a surgeon immediately.. Spondylosis, compressions, etc., etc. Have had these for 5 years.
However, got RSD in my hands and arms as a result of Botox injections in my neck and shoulders. I have had two surgical consults, both of which said I am not a good candidate for surgery -- but did not say why. I suspect both were terrified. And my rheum. has said that surgery on a person with RSD is not a good idea. What's the real story on this? Anybody know.
I suspect that whatever anyone says, I'm not gonna do it, as every single doctor and hospital I've been involved with has made me worse in some way -- sepsis, pleural effusions, aforementioned Botox, misdiagnosis of RA, prescribing prednisone, which rheum. is STILL trying to wean me off of. oh, and add adrenal insufficiency to the list. RSD is now moving into upper arms, shoulders, and across chest. Can anybody help?

[daniella]

Hi I am sorry for all you are facing and going through. The concern with surgery is RSD can spread to that area. I'm sorry you are facing a spread currently. Have you seen a pain doctor who deals with rsd? Proper pain treatment is very key with someone who deals with RSD. I wish I could give you more advice but I am not familiar with some of what you have done. Hang in there and feel better

[Rrae]

Originally Posted by sos51

I had a new cervical MRI on Monday, and got an almost panicked call from my doctor, who wants me to see a surgeon immediately.. Spondylosis, compressions, etc., etc. Have had these for 5 years.
However, got RSD in my hands and arms as a result of Botox injections in my neck and shoulders. I have had two surgical consults, both of which said I am not a good candidate for surgery -- but did not say why. I suspect both were terrified. And my rheum. has said that surgery on a person with RSD is not a good idea. What's the real story on this? Anybody know.
I suspect that whatever anyone says, I'm not gonna do it, as every single doctor and hospital I've been involved with has made me worse in some way -- sepsis, pleural effusions, aforementioned Botox, misdiagnosis of RA, prescribing prednisone, which rheum. is STILL trying to wean me off of. oh, and add adrenal insufficiency to the list. RSD is now moving into upper arms, shoulders, and across chest. Can anybody help?

Just wanted to give you a hug and say 'Welcome' !
I'm so sorry to see that you've been thru all this! You've found a wonderful place for support tho! Everyone here is like family and we keep each other strong. You'll find many caring folks here.
Pain is the common bond we share....... but sure could do without!

Truly Caring
Rae

[Jomar]

What were the botox injections into the neck & shoulders for?
A specific condition... or for general neck pain/spasms?

RSD is now moving into upper arms, shoulders, and across chest.
Could you have repetitive strain injuries or Thoracic outlet syndrome also?

[jocos]

Originally Posted by sos51

I had a new cervical MRI on Monday, and got an almost panicked call from my doctor, who wants me to see a surgeon immediately.. Spondylosis, compressions, etc., etc. Have had these for 5 years.
However, got RSD in my hands and arms as a result of Botox injections in my neck and shoulders. I have had two surgical consults, both of which said I am not a good candidate for surgery -- but did not say why. I suspect both were terrified. And my rheum. has said that surgery on a person with RSD is not a good idea. What's the real story on this? Anybody know.
I suspect that whatever anyone says, I'm not gonna do it, as every single doctor and hospital I've been involved with has made me worse in some way -- sepsis, pleural effusions, aforementioned Botox, misdiagnosis of RA, prescribing prednisone, which rheum. is STILL trying to wean me off of. oh, and add adrenal insufficiency to the list. RSD is now moving into upper arms, shoulders, and across chest. Can anybody help?

Hi there, I saw your post on the surgery question. I have not been on here for quite a while and just rejoined, But I also have a herniated disc w/compression on the nerve in neck for years and they have mention the same that I need surgery. But, Since having RSD since 1996 and having some ovary surgery and leg surgery prior and the residual I did get in those areas with RSD like symptons I would never do my neck now out of fear! Hope you do not go ahead unless absoulutely have too. Good luck. My prayers are with you.

[vanityfaire]

Oh you have been through a lot lately. Sorry to hear and hope you can find some time of comfort. I come to this forum often to get encouragement. I am one of the ones working with RSD and find days to be difficult at times. I work through it though. I have just recently had an MRI last week and they found nerve pinched in 5 places in my lower back. I have degenerative disks and they want to do a nerve block as soon as I can get one...next friday. And want a consult with a surgeon. I too am scared to do any surgeries with the RSD. I am afraid of it moving as well.

[yiisd]

Originally Posted by sos51

I had a new cervical MRI on Monday, and got an almost panicked call from my doctor, who wants me to see a surgeon immediately.. Spondylosis, compressions, etc., etc. Have had these for 5 years.
However, got RSD in my hands and arms as a result of Botox injections in my neck and shoulders. I have had two surgical consults, both of which said I am not a good candidate for surgery -- but did not say why. I suspect both were terrified. And my rheum. has said that surgery on a person with RSD is not a good idea. What's the real story on this? Anybody know.
I suspect that whatever anyone says, I'm not gonna do it, as every single doctor and hospital I've been involved with has made me worse in some way -- sepsis, pleural effusions, aforementioned Botox, misdiagnosis of RA, prescribing prednisone, which rheum. is STILL trying to wean me off of. oh, and add adrenal insufficiency to the list. RSD is now moving into upper arms, shoulders, and across chest. Can anybody help?

I have had RSD for 8 years and am currently 4 weeks post op from a three level, 360 degree cervical fusion. Yes, my neurosurgeon's eyes bugged out also when he saw my Myelogram and knew I had RSD, but ultimately it comes down to this: How bad is the pain associated with the cervical problem? If it can be tolerated, or controlled with your RSD pain meds, then it isn't a real issue. If it can't, then YOU must make a decision.
I can tell you that the key to as much of a successful surgery as you can get is the anesthesiologist that attends you during your surgery & does your post-op pain ( or pain management physician for post op pain ). As I said I am only 4 weeks post op, but I am encouraged. Yes I did have some of the RSD symptoms in my neck, but each day they get a little better, and yes I have had several post op complications .... but I can tell you with all sincerity - I would do it again in a heartbeat. My neck hurt me so bad and the numbness & tingling in my arms was almost unbearable. My pain management physician is being extra cautious in controlling all pain now and he said he would for 90 days after the surgery, but so far I haven't experienced the same symptoms that I have with other surgeries. It is your decision, and one that you need to take your time and weigh the pros and the cons. I wish the best to you. Since I just had such a HUGE surgery, please feel free to ask me any questions. I would be most happy to help.
Best Wishes.