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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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New Idea for my event!

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Old 05-26-2010, 02:18 PM #11
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You can send a pic pre-rsd!

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Originally Posted by firegirl View Post
This sounds like a great idea!! Unfortunately, I refuse to take pictures of myself now that I have RSD. I'm too embarrassed of how I look now. Good luck with this & thanks for getting the word out on RSD & all your hard work!!!
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Old 05-26-2010, 02:19 PM #12
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hannah~ that would be awesome to do! I was also gonna see if i can get a local pizza place to donate food for the bands/staff that's helping with the event... i could see if they'll just through in some extra and we could all meet before the show. but either way it'd be awesome!
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Originally Posted by hannah1234 View Post
I can make it to the event... barring any flare ups of course.. But then again we are all on the same page!!! That would be awesome if we picked a resturant the night before and got dinner or something to meet in person.
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Old 05-27-2010, 01:06 AM #13
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Andrea,
Meeting before the show at the Catalyst sounds the least complicated and would probably work out best...even if we have to pack our own din-din...
I am in a terrible flare, I think the worst I've had..and it simply can't get worse and furthermore has to be gone and banished by mid-August...I am so looking forward to this..
Thanks for all you do!
hope4thebest
xoxox
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