So this just popped in my head, haha..

It would be awesome to make like a collage or something to put up on the wall or on a table during my Rock Out event with pictures of RSDers with a little blurb next to their picture about how long they've had it, how it started, where they're affected, how old they were when they got it, and like what they miss about life pre rsd/what they wish they could do but can't do anymore.

If you want to be a part of this pm me and i'll give you my email to send me a picture of yourself and i'll let you know what info i want to put with the pictures.

This way people can put faces with the disorder... make it more personal...

yeppp!!! Ill email it to you.... i dont know if i have your email address

Hi Andrea!

That is a good idea and I will help, plus I would like to attend the event! Send me the info and I will try to get over there to attend!! Woot!

This would be a great start to the quilt endeavor. Can u imagine each one of us here just on NT creating a 12x12 square using their own creativity?

These are all such great ideas!
My pix would be of me walking along the beach or in the mountains! (pre-RSD..)
Allen, it would be great if you can attend ! I plan on attending as well! (barring any nasty pain flares!!)
Maybe we can get some other folks who live in California, and others who can travel to the area, and we could meet eachother at the event! That would be so great!
Thanks, Andrea, for generating all this enthusiasm!
Hope4thebest

OMG that would be soooo awesome if a bunch of us met at this!!! everyone could come before the actual show and we can like sit down and have dinner there or something. I'm gonna see if i can get one of the local pizza places to donate some food for the bands and staff... so it'd work out great!

i already have my work donating a few rooms for the bands and the founders of the org... but if you guys needed a room somewhere local i can see if they'd give me more, or i can ask some other hotels in the area to donate rooms. i'd just need to know what dates as soon as you guys would know.

Andrea,
just sent you a PM...I am so willing to help you out with the raffles, silent auction with merchandise from my own store. Tell me how I can help.

I can make it to the event... barring any flare ups of course.. But then again we are all on the same page!!! That would be awesome if we picked a resturant the night before and got dinner or something to meet in person.

This sounds like a great idea!! Unfortunately, I refuse to take pictures of myself now that I have RSD. I'm too embarrassed of how I look now. Good luck with this & thanks for getting the word out on RSD & all your hard work!!!