FAQ/Help |
Calendar |
Search |
Today's Posts |
![]() |
|
Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
Reply |
|
Thread Tools | Display Modes |
|
![]() |
#1 | |||
|
||||
Co-Administrator
Community Support Team
|
Maybe the dr wants it for his own records, it sounds like her pain has not been gotten under control , maybe this has to do with that in some way..
I recall seeing posts about her pain control problems, but can't recall the details...
__________________
Search the NeuroTalk forums - . |
|||
![]() |
![]() |
![]() |
#2 | ||
|
|||
Member
|
You are correct. I do like this doctor but lately she's had Suzy fill out forms indicating whether she feels better at all and or has "my services as a doctor helped you in anyway". I do feel this doctor is giving up on her. I've told the doc that Suzy's done the best under you, believe it or not, and told her what the positives were and that their is no cure especially a cure for one who received little to no treatment her first 4 years of the disease. In those days she may have slept 2 hours a night for years making her thinking disoriented. Now she does get sleep but her RSD has spread these past 3 years. She is better but her manner with doctors is not the best and never was even when she was a small girl. And she's very shy on top of it all. My wife feels strongly, with everything she's read, that the best thing for her is no evasive proceedures at all and try to rid stress and maximize movement without causing a flare. She wants nothing to do with stimulators, any cutting of bone, skin, nerves etc. She wants nothing to do with physical therepist who do not have a clue. And she's correct, somewhat. She has had ketamine and lidocaine infusions and several of them with no luck. People are different, some will try anything and everything, some just want to be left alone. Suzy just wants to deal with her condition her way and is steadfast about it and it rubs docs the wrong way.
|
||
![]() |
![]() |
"Thanks for this!" says: | Jomar (05-26-2010) |
![]() |
#3 | ||
|
|||
Junior Member
|
I went thru an FCE. After my FCE it was determined that I cannot lift push pull or carry anything more than 10 lbs. It is not a hard test and they said that now with it all hooked up to the computer it is easier to determine if a person is faking everything or not. The test took me about 1 1/2 hrs I think. Don't really remember it was a yr ago almost.
|
||
![]() |
![]() |
![]() |
#4 | ||
|
|||
Member
|
I imagine I will have to go through one of these.
What worries me, is that I can lift up my service dog, who is 42 lbs - but it feels like my muscles are being ripped out. It is not something I do often, but I do put her up on a table to trim her toenails. I help her up - I don't just lift her from the floor. I could probably lift her all the way up if her life depended on it, I could do it once, but I don't think I could do it a second time unless I rested several hours in between. I carry 12 packs of pop from my car to the house, but have to hold them up close to my body, and I do one, then a couple hours later, I do the second one. My problem is the PAIN keeps me from doing things. I don't have enough atrophy that I absolutely cannot lift anything - it just hurts so bad, I don't other than in my home PT exercises... then I limit myself to a bag of sugar lifted a few times. So - my worry is that I have worked hard to keep some strength - but even a gallon of milk causes me a LOT of pain... I could only lift one of those for one or two times, then I usually lay down. In fact, I usually buy milk in half gallons so I don't have to lift a gallon. Laying down does not help the pain - but it keeps my arm from swelling, and any exertion causes me to be very tired. I am very worried that a test like this will show me to be able to work, when I am not. I have a terrible time doing a few dishes, or doing a couple errands etc. |
||
![]() |
![]() |
![]() |
#5 | ||
|
|||
Member
|
Quote:
Last edited by Jimking; 05-30-2010 at 06:58 PM. |
||
![]() |
![]() |
![]() |
#6 | |||
|
||||
Co-Administrator
Community Support Team
|
From seeing the electrician doing his FCE I was noticing that while I would be able to do most of those tasks -except the overhead screwdriver work- I'd have eto keep dropping my arms down to get blood flowing in them again LOL.
Then I would have the delayed pain later or possibly even spasms. So I wonder how that would show up on the testing?? If at all?
__________________
Search the NeuroTalk forums - . |
|||
![]() |
![]() |
![]() |
#7 | ||
|
|||
Member
|
Quote:
|
||
![]() |
![]() |
![]() |
#8 | |||
|
||||
Member
|
I have to do the FCE test next week...order by SS...they told if I don't go my SSDI case will be closed and not go any further. I took these tests when I was a child because I also have Cerebral Palsy...I did horrible...we'll see what happens....
|
|||
![]() |
![]() |
Reply |
|
|