Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 07-12-2010, 11:36 AM #1
Jimking Jimking is offline
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Thanks for the support Wilbyfree. Why doctors don't see alot of things is way over my head. I did ask her once has anyone in your experience ever faked RSD? No, was the reply. If no is the answer then why do folks with RSD get the cold shoulder or the feeling that one is lying to gain something? I'm not too thrilled with American medicine at all. I really truly do not know how it compares with other modern countries.

My wife did talk to the one administering the FCE test and stated she doesn't think this test should be a gauge for those with RSD. WC cases it's primarily for. The other strange thing is on the doctor's prescription it says "EMC on right arm". This is the spot of my wife's injury where RSD first developed and then spread. The administrator thinks this is the wrong test for her but will administer the test anyway. She also said the test does not gauge pain.
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Old 10-13-2010, 11:36 PM #2
DONTTOUCHIT DONTTOUCHIT is offline
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Quote:
Originally Posted by Jimking View Post
Thanks for the support Wilbyfree. Why doctors don't see alot of things is way over my head. I did ask her once has anyone in your experience ever faked RSD? No, was the reply. If no is the answer then why do folks with RSD get the cold shoulder or the feeling that one is lying to gain something? I'm not too thrilled with American medicine at all. I really truly do not know how it compares with other modern countries.

My wife did talk to the one administering the FCE test and stated she doesn't think this test should be a gauge for those with RSD. WC cases it's primarily for. The other strange thing is on the doctor's prescription it says "EMC on right arm". This is the spot of my wife's injury where RSD first developed and then spread. The administrator thinks this is the wrong test for her but will administer the test anyway. She also said the test does not gauge pain.
Jim , I am going to be taking a FCE test in the very near future according to my Pain Doc and WC Nurse,Id be guessing but in 2 months or less.

Just wondering if your wife ever did take the test and if she did howd she do ?
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Old 10-14-2010, 09:19 AM #3
Jimking Jimking is offline
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Originally Posted by DONTTOUCHIT View Post
Jim , I am going to be taking a FCE test in the very near future according to my Pain Doc and WC Nurse,Id be guessing but in 2 months or less.

Just wondering if your wife ever did take the test and if she did howd she do ?
DONTTOUCHIT, I wrote a long letter to my wife's pain doctor who wanted this test done after treating my wife and diagnosing her with full body RSD for 3 years and why we think this test is not the right test for her. I presented other doctor's opinion, those doctors who are experts in RSD, in why FCE tests can be misleading to those with RSD. The doctor changed her mind and wrote a letter that she is not able to work (to be submitted to SS). Someone earlier posted that their FCE test was around an 1.5 hours. The test that was going to be administered to my wife was around 4 hours. This test is all over the place it seems.
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DONTTOUCHIT (11-27-2010)
Old 11-27-2010, 01:11 AM #4
DONTTOUCHIT DONTTOUCHIT is offline
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It appears my test is going to be done Very early in January according to my pain Doc
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Old 11-27-2010, 12:57 PM #5
Jimking Jimking is offline
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Originally Posted by DONTTOUCHIT View Post
Jim , I am going to be taking a FCE test in the very near future according to my Pain Doc and WC Nurse,Id be guessing but in 2 months or less.

Just wondering if your wife ever did take the test and if she did howd she do ?
No, I managed to change the doctor's mind about this test. It would have cost us $1000 out of pocket, was told it may take 3.5 hours to take. The biggest problem we had was the test takers felt Suzy having RSD should not take this test. Also her case was not a Workmans comp case. DONTTOUCHIT, is your situation a WC case?

However, sinse I created this thread things have changed. Last Nov. 2 Suzy was awarded her full benefits from Social Security.
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