Quote:
Originally Posted by loretta
Hi RUReady, I was just think about something that helped me greatly and prevented sensitivity issues a lot of RSDers have. They taught me this at physical therapy. Take 5-6 plastic bowls and put say coffee grounds in one, cotton balls, beans, sand, popcorn kernals. run your hands, feet thru them every day. It desensitizes your skin-sense of touch. even a bowl of different fabric textures. I believe, because of this, I'm not sensitive to touch, clothes. When my toes started curling up, my Dr. had me in the pool 86 degrees and counter curling them while swimming. In about 4 months my toes were touching the floor again. In 15 years, I am totally mobile except with one hand-it'slike a claw-delayed diagnosis and didn't get pt soon enough.
Before physical therapy, I found massage therapy helpful in warming up the muscles and got further in pt. I even got Blue Cross to agree to pay for massage therapy. A ortho surgeon wanted to break my frozen shoulder after 50 treatments. I called insurance and told them what he wanted to do, but I wanted to continue with pt and massage. they said they would be happy to pay for massage. I didn't know I had RSD for 4 years-so glad didn't have that ortho operate.
Take care, glad to have you. And sorry too for your injury at work doing a good service for 'us'. We all appreciate the work you do for us.
One of your friends,loretta
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Loretta , Thank you for the advice . Forgive my typing skills as they are not the best . The stimuli that is giving me the most trouble at this moment is my left leg , which is an area it spread to after aprox. 6 yrs. , the main problem I am having is with the hair on my leg . It is so like little barbs of wire and any stimuli hurts , they are so bad that they are shredding the sheets on the bed after a short time . I have since put a comforter on top of the sheets and it is holding out better but taking a beating and will need replacing soon . uggghh !!! I did the cornhusk machine for my arm when I was doing rehab and it seemed to help somewhat with my arm , however that has been years ago and I have not had any PT since. Do other folks do PT on a long term basis ? I haven't seen my PM doc in a while since I retired because it is such a hassle to make the trip. But he is just a phone call away , he has taken very good care of me and he helped me work a couple of additional yrs with treatments , meds etc till it got to the point I could not tolerate it. I have a pool at home , but the water is not as warm as you suggested . Do you have any links with the warm water recomendation ? I have mentioned it a couple of times but did not get much of a response . Thank you again for your time and responses . RUReady
Thank you for suggestions
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