Hi Dawn It is carol. I am so glad that we talked and am still in awe that someone else has experienced the "spells" that you described as I told you I also experienced these.
I have read all of the above posts by the wonderful people here at neurotalk and as you can see they have validated a lot of things that we discussed yesterday. Remember to keep me (and all of us here) posted,as it is the only way to help others. I am here for you. fondly-Carol

Really smells of a totally messed up, mis managed case from what you post! I agree.....get to a pain-managment doc ASAP. You are on the last fringe of whether or not early management will help or not!

Hey guys thanks for your words of wisdom. I am still trying to work full-time in all of this mess. I have been able to deal with the pain levels at present. The main issue for me are the near-faints (spells/episodes are what I like to call them). I have been seeing an Occupational Kinetics Office. They have me on Massage Therapy and Physical Therapy for now.

I am happy (unbelievable that I would be happy to see any doctor ) that I was able to get in to an RSD specialist here in Louisville. I go to see him on 6/18/2010. Hopefully, he can shed some light as to what is happening with me.

Last night, however, I had another new experience. My husband and I were going to bed and when he turned off the lights, I felt a sharp pain go from my neck down my back almost like electricity. The left side of my body went weak again. I became overly emotional. My husband freaked out. He immediately turned the lights back on.

It had been 1 week since my last episode so I was feeling pretty good. I cannot understand how turning the lights out did anything to me. I don't usually have symptoms other than neck and back pain when I go to bed. My episodes usually happen when I am at work. Has anyone had this experience? I didn't faint, or black out or loose movement. Just went weak and emotional. The weakness has continued into today. My left cheek is still semi-tingly/numb.

Hi GP, and welcome!

Sorry to meet you under these circumstances, but you have found a wonderful and supportive home with us. You will find that every single person on this forum understands completely what you are going through. I have made so many wonderful friends here and have no fear of asking the "stupid" questions. The only stupid question is one that we don't ask. You are encouraged to share your true feelings, your fears, your frustrations and any other thing you want to share. No judgement, EVER. It amazes me just how loving and compassionate everyone is. I only wish my "real" friends were as supportive as my friends here!

I've had this beast for almost two years now. I was squatting down at work and my boss didn't see me and crashed into my left hip with a steel kitchen cart. My rsd is lower back and left leg. I am unable to work (well, my doctors say that but w/c just dropped me and said that I CAN work, but cannot walk, sit, stand, use my arms/legs. They also say that even though I am taking high doses of morphine and medicinal marijuana (sp?), cannot drive, spend days in bed at times and have epidurals that paralyze my legs for days, I am able to find a new job (after I fail the drug test) and support myself. OOOOOkkkkaaaayyy!

Anyway, please don't feel alone. We have all been terrified when reality sets in. We will hold your hand and pull you through the fire when you need it. Keep us posted...

Another new friend,

Kim

BTW everyone, its still me, kim. I had to change my screen name.

Everyone keeps saying that I need a pain doctor. At this point my pain is managable with physical therapy, massage therapy & I am receiving chiropractic care as well.

I guess I am confused as to why I need medication for something that is managable without meds.

Dawn

Count your blessings. My wife who has RSD went 4 years without meds. She's had this condition 8 years. Hopefully your condition will stay as is or decrease, for many that is not the case.

GP.. hello..Keep Smilin... back here with you.... and can you believe.. I am still smilin?? Who ever in their right mind would have made up such a screen name??? GUILTY!! (and a little insane)...

Anyway..I want to shed some light on the subject of finding a Pain management Dr. just as Jim was eluding to..it is wonderful that you can tolerate Pt and such at this time...Continue doing the "hands" treatment on as long as you find relief at this time but the thought of having a PM or anethisologists still stands as one day you may need some more intense guidance and possibly meds, just as Jim's wife, 4 years no meds..4 years need meds..... Myself, I am not taking anything but not by choice, I have a ultimately sensitive tummy...so I chew on many bullets in a days time.. so use this time to hunt and pick for a good RSD knowledgeable Dr.... and as long as you can still get by on alternative care and when/if the day comes you need a new set of eyes..you'll have done your homework..not easy to find an RSD knowledgeable, then likeable Dr.... Take this time and let us know how you are doing!! We are family and a family who cares..a bunch!

Hugz, Kathy