I was in a car wreck in Dec 2009. I thought I was on the mend when 20 days after the accident I had my first "spell" I didn't know what it was. I've never experienced it before. I started to feel real funny, disconnected, disoriented, then these weird sensations were coming from the pit of my stomach and radiated out through my legs. My body got real weak and I couldn't hold my wait anymore. I squatted and closed my eyes. My co-workers tried to talk to me. I heard them but I wasn't able to respond. My throat was constricted. I couldn't move from the spot I was at until whatever it was I was going through went away. All I could do was let the tears run down my face. I was terrified. When this thing finally past I was exhausted and still disoriented. Next thing I know all the pain from the car wreck came back. Then my back started to burn (like someone had a blowtorch to my back). I am numb in spots on my back.

a few days later, I had another spell, and that time the left side of my body went weak. I didn't regain all my strength. I am 6 months into this thing that is going on and I still don't have very much strength in the left side of my body. My left hand/arm turns blue/purple as do both my feet. They are extremely cold. I notice that I have these "spells" more frequently in the cold than the warm.

I went yesterday to a Neurosurgeon who basically told me "You don't need surgery on your spine [I have herniated disc tourching the nerve sacs in the neck and 2 places in the mid and lower back]." I asked him about these "spells" that I am now having every other day, and he simply told me that wasn't his field of expertise. I then showed him the blue hand and feet, and he simply said "That is Reflexive Sypathetic Dystrophy Syndrome." I guess I was supposed to already know that. Okey dokey.....

That brings me here to you all. I have spent 6 months trying to get a diagnosis and to no avail. The neurosurgeon I saw yesterday said RSD wasn't his area of expertise either and wouldn't diagnose me with it. I am at my wit's end and from what I see, if something doesn't get done soon enough, then I will not have the possibility of this thing going into remission. I am not in a lot of pain. My left arm and leg tingles and aches. My back hurts every now and again, but what is bothering me most are these "spells". They seem to be near faints. Some have said seizures. I have an appointment with the UofK Research Center at the end of July (2 months from now) with the Neurological and Muscular portion of the center.

I would like to find someone that has some type of expertise in or close to the Louisville, Kentucky area, that I can get in to see before the end of July.

Any help? Words of wisdom...

BTW certain noises/pitches are really irritating to me lately. Movies that are extremely busy make me dizzy. These are new to me, is this part of it?

Thanks!