Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 02-01-2007, 08:22 PM #6
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frogga frogga is offline
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Location: UK
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I hate the convo stuff - it makes me sound so dim! well.. it's sorta green and red but not really and it's sometimes gold and spiky...... (anyone guessed yet)
Over the last year or two I have developed a tonal language that mum and the carers can understand (And some mates) - esp in the morning when my tablets haven't kicked in so the pain is unbearable and i can't really talk very well..)

I sound like the soup dragon off the clangers!

do you get patches when you can't reember what happened? I have lost an entire year to that (when I was 17) and still get it sometimes where I find I have an hours block where I don't know what happened - very weird!

bizzarely ketamine hasn't helped me - maybe that's cos my brain is like a colander anyway without adding meds etc!

take care

rosie xxxxxx
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