Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 06-27-2010, 01:35 PM #1
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Originally Posted by daniella View Post
Keep smilin I agree that things that I used to never give a second thought or were natural have become something I have to think and stress about. I think that is where a lot of mental stress comes in. Where one has to worry about the little things that should not be a concern. I try to stay in the moment and remind myself some how I get through but still stressful. This condition and the people like all here have taught me hope. I try to hold onto it. Somedays I am better at it then others and in no way am I up to the people here in their outlook. Trying to learn and thankful to have good teachers so to speak on this board.
Hey D....

You are a very important part of our family here...Your experiences and advice here is noteworthy and very helpful...No king pins in this family...weezz.. a great family!! Best noted that we all have our days..days of low, hopeless feelings and other days when we can move mountains..that is why we take each day as it presents itself and try not to encompass too time ahead..Live in the moment and allow your mind and heart to feel the love..its free ..it feels much nicer that the pain and it will take us further...

Hugz....Kathy
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Kakimbo (06-29-2010)
Old 06-27-2010, 10:46 PM #2
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RUR.......I hear ya !

For me....and I'm sure most of us, the wish to avaoid added pain is compounded by poor sleep and being exhausted all the time.

I usually feel like a need some external motivator to force me to do something, like going to an event or plans with friends, but I can't tell you how often I've had to cancel those type of things too.
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Gee, this looks like a great place to sit and have a picnic with my yummy bone !
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Old 06-28-2010, 05:09 AM #3
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Keep smilin thanks you have such words of comfort and wisdom
Finz for me it is a catch 22 sometimes when I have to be somewhere I can do it but I have also had to cancel. The other issue is with set plans is that it causes extreme anxiety before hand. Like if I don't feel well etc worries. So that is a stress in itself. I can very much relate to the lack of sleep. I guess it is just about doing the best we can in a bad situation and creating the best life we can with the limits we have.
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Old 06-29-2010, 10:00 PM #4
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Hey everyone!

I love your posts. I understand them and I feel at home to respond and share with all of you. Thank you for being honest about your hurts and your fears. This monster honestly scares the crap out of me and I feel very alone in my thoughts. I am having very contriversial (sp?) treatments and noone that I know has any knowledge of them but me and my doctor. It's very scary. This board has brought me out of my shell and has given me a sounding-board to feel secure enough to share and ask questions.

Without all of my friends here I would not be where I am with treatment or faith or the ability to cope. I have learned more from your posts than I could ever learn from a "trained professional".

I only hope that I have influenced one person and helped them to feel better. That would be my goal; just to have aided someone to have a better sense of relief and a sense of calmness. Love to all...

Kim
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Old 06-30-2010, 10:37 AM #5
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Quote:
Originally Posted by Kakimbo View Post
Hey everyone!

I love your posts. I understand them and I feel at home to respond and share with all of you. Thank you for being honest about your hurts and your fears. This monster honestly scares the crap out of me and I feel very alone in my thoughts. I am having very contriversial (sp?) treatments and noone that I know has any knowledge of them but me and my doctor. It's very scary. This board has brought me out of my shell and has given me a sounding-board to feel secure enough to share and ask questions.

Without all of my friends here I would not be where I am with treatment or faith or the ability to cope. I have learned more from your posts than I could ever learn from a "trained professional".

I only hope that I have influenced one person and helped them to feel better. That would be my goal; just to have aided someone to have a better sense of relief and a sense of calmness. Love to all...

Kim

Kim....

Oh..Me!!!! me.. let me be the person you have infleuenced...and I ain't whistling Dixie, Kim.... You are a darling and I am so happy to know you...... SO nice to read your sweet complimentary post...thank you for all of it!! I know it came straight from your heart and I am so appreciative of it..

Much love for a pain-less day!!

Kathy
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Old 06-30-2010, 10:09 PM #6
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Well I find my self "pushing through the pain" during my working hours then when I get home I am literally done. I then tend to sit in my recliner or lay in my bed. Take my meds and veg out until the next day, when it starts all over again. On my days "off" I tend to sleep in until LATE morning, get up take my meds, maybe throw some dishes in the dishwasher and clothes in the dryer. Sit in the recliner and just let my body rest as much as it can. I am sure that I will not be able to keep this up for long but I am trying hard to participate in life as much as I can. Just pay and pay for that.
z
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Old 06-30-2010, 11:22 PM #7
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Me too pooh.

It sucks. If I am figedy (sp?) I will wander around my house (all 900 sq.ft. of it!) just to try to stay busy. I was used to being 100 miles per hour and now I am negative 10. My mind still thinks on hyper-drive, but my body is in reverse. It's hard when I can't keep up with myself. Even harder when I try and pay for it for three days afterward...Don't like this at all! i need to find a happy-medium where the two can co-habitate.
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Old 07-01-2010, 06:14 PM #8
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Hi friends, I think the answer to this is a happy medium. The problem, other that the obvious RSD, is that it seems like from the little bits of information that everyone gives, that we were all over-achievers!! I, too worked all kinds of manic hours and loved my job. I was also raising two kids by myself and putting them through college, then WHAM! I fell off a counter at work, and my life changed forever. I really went through a dark period before I could come to grips with the fact that I would never be the same. I simply can not believe how much I have had to slow down and how much time I spend sitting around now. So onto to tomorrow, I am just glad that nobody knows what I planned to get done today. Lisa
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Old 07-01-2010, 12:18 AM #9
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ks...

You're gonna make me cry! Thank you for that! You have truly inspired me because of your inspirational (sp?) wisdom and compassion.

I thank you for being so uplifting always and such a wonderful friend.

Wish I could hug you for real!

Kim
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Old 07-01-2010, 05:24 AM #10
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I always feel this board of people are so caring and educated too. It amazes me how people who are going through so much can be so caring to others. I have been inspired and taught so much by this board.
Kim I can really relate. Pre RSD I was so active and now sometimes if I moved any slower I would be going backwards. I get the jitters too yet my leg traps me it feels like there is a huge wall up as a barrier. That is my goal is to find a happy medium. That comes with a lot of trial and error. Especially since one day something impacts different then another.
Hang in there all
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