Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 07-07-2010, 11:27 AM #11
abrown176 abrown176 is offline
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Thanks Mike! I decided to call and tell her that the doctor told me I should wait for the results of my CT scan before continuing my treatment. I just was so sore this morning I could not take going in today and I will feel better knowing what they think before looking for a better one, on that will take time and answer my questions. Thanks Again! Angela
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Old 07-07-2010, 04:53 PM #12
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Quote:
Originally Posted by abrown176 View Post
Thanks Mike! I decided to call and tell her that the doctor told me I should wait for the results of my CT scan before continuing my treatment. I just was so sore this morning I could not take going in today and I will feel better knowing what they think before looking for a better one, on that will take time and answer my questions. Thanks Again! Angela

Angela,

I wonder, did you tell this particular chiro, that the rubbing hurts? (It's just not practical with RSD, as I find a typical massage turns on the pain, that's a different subject).
My chiro's learned quickly not to do any rubbing! A simple adjustment, with the heat and stim work great for me.
Lot's of folks really like that 'massage' thing. Not us, usually.
There is a massage technique called 'Alexander' that works well. There is no deep tissue rubbing. It's about drawing the pain out from the spine, all the way out through the finger and toes. It works amazing well, but, you do get very oily! (So there's no friction on the skin to aggravate the nerves).

I'd call your chiro, or meet with him, and simply ask him to stop with that rubbing massage.
Hope that helps!

Pete
asb
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Old 07-07-2010, 07:35 PM #13
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Like Pete, I ended up with full bodied RSD by being adjusted by a D.O. She did such a job on me, I won't even let a Chiropractor touch me. Even if they say they know RSD, the won't get within a mile of me. I took Susan to a chiropractor for her back when she was 16 and she said it did nothing for her either. I had a cousin to die of cancer because his chiropractor did no testing before working on him.

I have had the same PTers for years and I trust them, husband and wife team. They know me better then I do now.

I don't need anymore adjustments. I've been adjusted way to much as it is.

How do you know if you are dealing with other problems without more testing, how would they know? How would they know if it was RSD or an injury without testing? Get more testing and make sure the test are read right. I just had some test done awhile back that the hospital didn't read right. The Dr. walked over to the hospital and read them for himself.

I do believe sometimes in our desperation to get better we jump before we look.

I hope you do find some answers soon and feel better soon.

Ada
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Old 07-08-2010, 03:52 AM #14
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Hello Angela,

You owe it to yourself to ask questions of your doctors. Sometimes I don't know what to ask but when I have a question about their abiliy I ask. Ask you Chiro what she knows or understands about RSD/CRPS. She may know a little but if she is using her hands and massageing and adjusting it can create more long lasting pain.

My chiro. is a an activator and hand manipulation docotor. Once he deteremined my problem was RSD he went from hand manipuation to his activator. The activator is a small spring loaded instrument. He finds what needs manipulated places the activator over it and releases the spring. We have a joke between us. On the days I'm more sore than other from my pain I will ask him to remove the sharpe end of the activator. Which is code for him to adjust the amount of pressure it will apply when he activates it on my spine, knees, ankles or anywhere that needs adjusted.
If you want to continue with the Chiropactor ask her can she do activator adjustments or refer you to someone who can. If she can't research it on the computer and find someone in your area.
I will have some pain from time to time that doesn't go away quickly. It's common to have pain with an adjustment even if you don't have RSD. It depends how badly you were out of alignment.
I know some on here won't agree with me, however, I use ice on my RSD.
I have hot RSD. When it is flaired and I have an adjustment ice packs help settle the extra inflamation from the adjustment added to the RSD. I haven't made my RSD worse over the last 9 years that I have been doing this.
I've asked my Chiro. to come up with a suit made of ice so I can cover my whole body when it burns he laughs and tells me to go to the Y and get in the cool pool. The cool water does help me.
I hope I've helped and not just rambled on. Chiro. works for me I was lucky and found a doctor who knows RSD. DO's have some traning while in college on adjustments and some think they can replace a CD. My family doctor who is a DO is a believer of CD's from seeing how it has helped me over the years. Both doctors have been with me from the beginning.
All fields have experts a chiropractor is an expert of the nervous system not to be replaced by a neuro doctor (I found a good one in that filed).
I hope you find relief sooooon!!!,
Sherrie





Take care,
Sherrie
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