Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 07-06-2010, 01:37 PM #1
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Default Hello everyone,..........I'm new here

Hi, I had RSD in my left wrist in 1991, so I am very aware of the horrible disease that is RSD. My prayers are with you all every night that you may find relief,... as I did. I was sucessfully treated with a Stellate nerve block in my throat. The intense burning, swelling and redness went away. I do suffer from atrophy in the hand and wrist. There is weakness and loss of function, but it is not too bad now.

I had a stupid accident last week with a tree branch lopper. After I removed my boots and was going up the steps of the deck, the lopper slipped out of my hand and stabbed the top of my right bare foot. The foot is red (three stitches) and swollen. I am taking an antibiotic and Lortab for the pain, but I can't help but fear that I have a mild RSD in that foot. I do not have the awful burning pain, and I can touch it,..............my question is have anyone here gone into remission from a RSD injury, and reinjured another part of your body and had RSD return in a milder version?

Any feedback will be greatly appreciated. Thank you all for your time, and may God bless you all.
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Old 07-06-2010, 01:46 PM #2
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Welcome to NeuroTalk....

There have been several studies in other countries over the past decade that Vit C taken in 500 to 1000mg a day for 50 days or so after a foot/hand trauma/surgery prevents RSD in many people.

It is not 100% but it is certainly simple and easy to do and may help.

This post has some of the links, but not all of them.
http://neurotalk.psychcentral.com/post670648-7.html
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Old 07-06-2010, 01:55 PM #3
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Thank you mrsd. If that is true, perhaps the fact that I do take daily vitamins is the reason this foot feel like a mild version of RSD. Thanks for your help.
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Old 07-06-2010, 01:57 PM #4
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I'm not having much luck figuring out how to reply here,.........haha. thanks mrsd for your help. Now I can see if this will post.
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Old 07-06-2010, 02:11 PM #5
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There is a slight delay for new posters making replies here.
All are read by a moderator for a short time, so don't fret and think your post is lost. One of yours was a duplicate and I removed that one.

You will be past "new" status soon, so just enjoy the forums and post. There is no need to redo posts.
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Old 07-06-2010, 02:12 PM #6
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thank you once again.
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Old 07-06-2010, 11:20 PM #7
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Welcome!!!

And yes yes yes I have....

My RSD started in my wrist during the time I was in college and playing volleyball. I had a SCS implanted LOVE IT. I was the closest to remission I have ever seen until I was at my sisters house cooking. I was boiling an artichoke and about 1/4 cup of boiling water hit my arm... BOOM i could feel the rsd creeping from my arm up across my shoulders down my back... I took triple the amount of medicine to stop the flare... it eventually creeped down mildly to my leg where my leg gives out with weakness and has DEEP aching pain and sensitive to put any pressure(even my arm some days)I did ketamine infusions (love my ketamine . After about 4-5 months I was FINALLY doing great! I was up and walking and only had to lay down around 3-4 oclock and rest for the evening. About a month and a half ago I had to have my wisdom teeth out. I only did one side which was my left side because that root was growing right smack dab around the nerve in my face and I started getting tingling in my face from the nerve being bugged ( of course, only me with RSD has teeth growing into nerves). I had the two out, a month and a half later, my left side of my face feels mild RSD along with my ear and eye pressure. I pray to God that it isn't RSD and its just my nerves waiting to calm down. I am on so many meds as well. So that is my stance and I go drs tomorrow.

So, yes is my answer. I went from just my arm to my whole right side of body. I have had Make sure you call your PM doc and get your meds to calm the flare down to kick the rsd in the face right now rather than later. I pray its not rsd....

Hannah
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Old 07-07-2010, 12:47 AM #8
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Quote:
Originally Posted by mrsD View Post
Welcome to NeuroTalk....

There have been several studies in other countries over the past decade that Vit C taken in 500 to 1000mg a day for 50 days or so after a foot/hand trauma/surgery prevents RSD in many people.

It is not 100% but it is certainly simple and easy to do and may help.

This post has some of the links, but not all of them.
http://neurotalk.psychcentral.com/post670648-7.html

Hi Mrs. D.

The studies regarding Vitamin C were done specifically for people CRPS following fractures. That being said I have no doubt Vitamin C is still highly valuable following any type of injury but the clinical data indicated a reduction of CRPS symptoms in fractures. The OP might be wise to focus on an anti-inflammtory dietary protocol in this instance.

Dear Notagain.

Welcome to our forum.

I do hope this is just a nasty injury that will heal without any RSD complications. You have come to the right place here as there are so many wonderful supportive people here. I can't answer your question myself because I have centralized RSD with left side involvement. Any bump to my left side no matter where it is causes me to flare. Do all you can to keep the inflammation down and under control and you should be able to get through this just fine.

MsL
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Old 07-07-2010, 06:24 AM #9
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Yes wrist fracture was one study. But there are others too.

http://www.ncbi.nlm.nih.gov/pubmed/19840748
This one dealt with surgery on the ankle.

Trauma releases cytokines, which are chemical signal messengers to other systems. Antioxidants may be a brake on excessive cytokine release.

It is also interesting that Vit C was looked at for another neuropathy-- Charcot Marie Tooth type 1A. But results have not been as expected, based on animal studies. We may see more in that regard in the future.
http://en.wikipedia.org/wiki/Charcot...-Tooth_disease

Given that Vitamin C is easy to do, when an injury is fresh, I believe it is worth trying. If the RSD is already there, however, that would be a different scenario entirely.
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Old 07-07-2010, 08:02 AM #10
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Default Hi,

I had TOS surgery that brought on the RSD and had 3 blocks later on that seemed to have put it in remission, then had rotator cuff surgery and that brought it back out again.

When something like your accident happens, if you could go to the hospital and have a block while they do the stitches or have the Dr. to do some lidocaine injections in that area it might keep the RSD from going to that area.

I have had many surgeries and they have done blocks or infusions to try and keep the RSD from spreading to that area and so far it has worked. When I didn't get blocks, it spread.

Ada
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