Dear Kim, Rochelle, and All,
I hear all of ya loud and clear! This RSD is not for the faint of heart or the weak people as we are very strong to be able to go through this mess. Please hang in there and try to believe that whenever something bad happens to you it happens for a reason. We have no reason why (and wish it would go away fast) but leave it up to God (or whomever you believe in) and try to look at the positive things (I know they are few and far in between). They may not happen right away but as times goes by and you are done grieving all your losses there will be things that you can do even if small and try to be glad you can do them. Take it one day at a time and pray and laugh each day and you will be fine. I don't know why God allows all of this suffering to happen but I know He has something wonderful planned for me...I can feel it in my bones!
Take care,
kathy d

wow -that's exactly what I've said to my husband "I've lost my "me" or this is not "me". I'm the one that was learning to kayak, taught my girls to shoot hoops and play baseball, that played in pick-up volleyball games, and did everything spontaneously with my daughters to teach them to enjoy life and be a part of it....but now suffers when the car windows are open and the wind blows on my skin, or the air conditioning gives me goosebumps and triggers the all too familiar burning.
I am still "me" but it's so much harder to show the world that this bizarre bunch of symptoms is not who I am now - I'm under here still.

This sounds really, really crazy but we have to stay strong with love in our hearts..Be open to eachday as it presents itself and accept that we are who we are...strong, forgiving, accepting and warriors of our disease..As I believe there is a reason why we have this and it is a positive reason, (this is where I will get an arrow in my back) but we must be proud and determined of who we are!! Although our lives have been altered for the long haul we won't and can't not waiver...as one day..it will all make sense..In the mean time, we do what we need to and smile aniouxiosly awaiting the outcome...

I am so proud of each of you, my RSD family... and even prouder to have met and know you!!!

Much Love, Kathy

As always, you are awesome. Thank you!
Kim

Thank you very much...and Ditto!!

Hugz, Kathy