Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 07-16-2010, 08:23 PM #9
MysteryPainMom MysteryPainMom is offline
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Join Date: Jul 2010
Posts: 12
10 yr Member
MysteryPainMom MysteryPainMom is offline
Junior Member
 
Join Date: Jul 2010
Posts: 12
10 yr Member
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Quote:
Originally Posted by dreambeliever128 View Post
I'm with Kathy on the choice of the 3 Drs. she mentioned.


As far as University hospitals, some may be good but I consider them learning hospitals and they use the patients to learn on. I went through that with the U of Denver and have heard it over and over from people around here that have went there. My PCP finally made me understand that they were using me for a guienna pig.

Call around and see if you can find a good Anesteologist that has his own office, a good PM, or a good Neurologist. I honestly think though the Drs. brand don't matter if he knows about RSD. If one don't suit you, move on. The best Drs. I have had for my RSD has been my PCP, a hand surgeon, and an Anesteologist.

Ada
I really love this forum. I am glad that I found somewhere where people understand. I can relate to people saying that people on this forum know more than many of the doctors. I have found that to be true already.

Ada and Kathy,

What kind of doctor diagnosed you? The PCP was the one that first mentioned it, but I don't know if he feels as though he can give us a diagnosis.

U of M hospital is very good. I have heard many great things about it. The other option was Cleveland Clinic. They have a program for kids with RSD. The PCP decided that we could go to U of M because of the abnormal EMG. The neurologist didn't sound like he had much faith in the EMG, and he suggested that we have it repeated by a musculoskeletal (sp?) doctor. The PCP is going to talk to the neuro, so we will find out what they decide.

Has anyone else had a situation with the EMG showing something puzzling?

Tracy
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