Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 07-26-2010, 06:27 AM #1
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Definitely night time here. Well, let me elaborate. It's not so much that *I* like the night time as that my body does. No matter what I do, I cannot sleep at night. I also feel my best - relatively speaking, of course - in the middle of the night. It's when I can manage to get myself out of bed, try to do some laundry, straightening my home, etc.

When I am able to sleep at all, it's almost exclusively during the day.

Oh, and my RSD is in my leg, from thigh to knee. Below my knee I still have no feeling whatsoever. Initially that really bugged me. Now I thank God for it. I think if my feeling is restored below my knee and I can feel this horrible pain down there, that might just tip me over the edge.
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Old 07-26-2010, 07:40 PM #2
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Definitely daytime, especially morning. I feel the best then and have the most energy. As the day progresses the pain increases. By nighttime I am exhausted and just feel spent. Plus the pain meds I take have given their all by around 7pm and I'm not allowed to take anymore (hope to change that at the next pain apptmt).

I mentally love rainy and cloudy weather as we hardly get any of that here in Arizona but it physically makes me hurt more.
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Old 07-27-2010, 08:27 PM #3
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Night time. I have always been an owl, but since RSD it seems like I can actually sleep better in the mornings, usually noon or 1 p.m. When I have to maintain a regular schedule, i require a nap at about 5 p.m. and usually sleep the next time that I am able to until 3 p.m. My mother makes me feel terribly guilty about this. She is a complete morning person and has no understanding about this disease. If she wants me to do something, it is always early in the morning and it sometimes causes real pain problems for me. Makes me wonder if there is a link in there somewhere about rhythms that is connected to this beast. Lisa
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