Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 10-21-2010, 01:54 PM #21
Swatgen27 Swatgen27 is offline
Member
 
Join Date: Oct 2009
Location: Illinois
Posts: 114
15 yr Member
Swatgen27 Swatgen27 is offline
Member
 
Join Date: Oct 2009
Location: Illinois
Posts: 114
15 yr Member
Default

Krank
I live in Aurora IL and I have seen Dr Lubenow. I saw him after all treatments failed and part of my new criteria for treatments is they have to be non-invasive. Dr. Lubenow agreed and offered Ketamine as a treatment. I was told to do it once a week for 3 weeks and then we would review the progress and go from there. Not once did Dr. Lubenow administer the treatment and the hospital was unable to get me scheduled for three weeks in a row so between the 2nd and third treatment a week lapsed. I had great results with the first and second one and was able to cut down my meds by 50%! But because I skipped a week between two and three it was not as successful. Dr Lubenow did not like that the success decreased and said that the next course was for me to do an invasive 5 day treatment with a cathadar in my spine (like a nerve block but more invasive) and when I said no to the invasive treatment he was enraged! He told me that I would die before I'm 30 and that I was hopeless and walked out of the room. I was so shocked and outraged that I never looked back. He has a horrible bedside manner and be careful if you have your own opinions on your treatment plan. This all happened in February 2010. Good luck with him as I found the whole thing traumatic. When he told me about the 5 day spinal cathadar treatment he did not say that they would still administer Ketamine. If that is what he is doing let me know and then maybe I will agree to the treatment.

Last edited by Swatgen27; 10-21-2010 at 01:55 PM. Reason: Add the person to whom Im responding too
Swatgen27 is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Clinical Trials Stitcher Parkinson's Disease 4 02-16-2010 09:24 AM
Looking at clinical trials paula_w Parkinson's Disease Clinical Trials 1 05-27-2007 08:15 PM
Clinical trials - what do you think? jeanb Parkinson's Disease 5 05-17-2007 11:51 AM
Clinical Trials HubbyWithRSD Reflex Sympathetic Dystrophy (RSD and CRPS) 0 01-09-2007 09:38 AM
Clinical Trials jcherry Reflex Sympathetic Dystrophy (RSD and CRPS) 6 12-16-2006 10:13 AM


All times are GMT -5. The time now is 04:58 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.