Hi Tim and Welcome. I am so sorry for your health issues and the anxiety that comes with not knowing what is going on. I got RSD following surgery, but didn't know it for 4 years. In my 3rd year was diagnosed and treated for rheumatoid arthritis, even though my tests were negative. I disagreed with Dr. and he didn't listen to me. So I went to a sports injury group a couple states away and in 1 minute the orthopedic hand Dr. said RSD. Sent me over to hospital for nuclear med hand test you are speaking of. It confirmed his diagnosis, and immediately started on therapy. I didn't get full use of hand back because of wrong diagnosis and delayed physical therapy-have a claw for left hand, but at least can cut my food now and when rsd spread to other hand and feet and full body, the therapy kept me mobile and walking. I'm so thankful to the ortho doc in Oregon and the study proving rsd. I came back to Arizona and saw neurologist and ortho hand doc and worked hard on keeping mobile.
I have a wonderful Dr. and am grateful for my mobility. It's not easy-the pain-full body or generalized and internal RSD. It's been 15 years now and appreciate all the support and compassion here on NT. Hope you get answers and the help you deserve. I've learned a lot on rsdrx.com puzzles list-a 40 yr practice by an RSD Dr. He is retired now, but learn a lot from his website he left up for us to read.
Let us know what you decide to do and how it comes out. We care-one of your new friends, loretta