question about rash

finz · 08-23-2010, 02:07 AM

What does the rash look like ?

Where on her body is it and where is the RSD ?

SandyS · 08-23-2010, 07:04 PM

Hi Kathy,

Well the rash seems to be going away...I think it may be an allergic reaction to something. I rewashed her clothes but with not laundry detergent this time. Who knows, I feel as you do it is the RSD. I wish there was some doctor that could really tell us what all of this is. I just hate that she is so young and this has been her life for the past 6 years. I will let you know if things change.

Thanks Sandy

Quote:

Originally Posted by keep smilin

Hi Sandy...

I ma sorry I am at a loss as far as the rash that Lindsey is experiencing.. All I can surmise is the 4 headed ugly animal..RSD is up to something again..Possibly an internal thingie going on theat is expressing itself on the outside of her body.. maybe nerves...once again connected to RSD.. Possibly time to have her Dr. peak and then I'd love if you would share with us the results....

Sorry I can't be a better help to you...My best to Lindsey and hope soon you will have an answer...

Hugz...Kathy

SandyS · 08-23-2010, 07:07 PM

Hi Lisa,

Thanks for the heads up. I will give them a call and find out. Tell you dad thanks for the info. I need to buy her baby dreft...I love that smell anyway.

It will remind me of when she was a baby.

Thanks, Sandy

Quote:

Originally Posted by Lisa in Ohio

Hi Sandy S, On your Gain box there is an 800 number for Proctor&Gamble. If you call them they will tell you if they have re-formulated the Gain recently or changed any of the materials in it. I am suspecting that it is probably the perfume that they add to the soap. Gain is being re-configured with stronger scent in it as the company wants it to appeal more to the Hispanic population (no offense intended to anyone). My dad retired from P&G from the plant that makes Gain (liquid) but the company is real good about keeping the people that retired in the loop. Also two of my cousins work at the same plant.

Even some of the so called scent free detergents have some scent in them, just in smaller amounts because without it, the soap really stinks. Hope that helps a little, Lisa

Sorry for all the mis-spells tonight, I am having a stupid finger day.

SandyS · 08-23-2010, 07:13 PM

Hi Finz.

The rash is on her back and neck. She has all over body RSD. So I don't know if it is in her back if it is all over body. The rash is red and raised, today it looks like she has been scratching it...so it is kind of raw and bleeding...but it looks like it may be healing. She has been taking benedryl and it seems to be helping. Hopefully it is going away.

Thanks Sandy

Quote:

Originally Posted by finz

What does the rash look like ?

Where on her body is it and where is the RSD ?

loretta · 08-23-2010, 10:08 PM

Quote:

Originally Posted by SandyS

Hi Finz.

The rash is on her back and neck. She has all over body RSD. So I don't know if it is in her back if it is all over body. The rash is red and raised, today it looks like she has been scratching it...so it is kind of raw and bleeding...but it looks like it may be healing. She has been taking benedryl and it seems to be helping. Hopefully it is going away.

Thanks Sandy

Hi Sandy, RSD rashes can pop up anywhere when we have full body or generalized. They come and go. It's summertime and 110 where I am. I've noticed when I perspire on my neck, the rash arises.
Because RSD is an autonomic condition, our body temperature is out of control. If you put your hand on the small of Lindsey's back and it's hot, that is a sign of being in her spine. I get rashes in areas of sweating. My Dr. says to be sure and use sun lotion when outside. I have several hot spots. I've also noticed lymph gland swelling that goes with RSD. I have had lymphatic massages to release the swollen gland and the liquid in the lymph.
As a Mom myself, I can't imagine how painful this is for you to see your daughter going thru this. My daughter used to drive me to therapy-she was 15 when I first got it, but had 3 remissions. I didn't get it full blown till after she finished college and married. My husband and daughter and son in law are wonderful to me. Please give Lindsay a hug. your friend, loretta

cindi1965 · 08-24-2010, 07:44 AM

Quote:

Originally Posted by ali12

Hi Sandy,

Sorry to hear about what Lindsay is going through right now. I hope she feels better soon.

I have a rash over my body at the moment. It looks kinda like i've been bit by something but haven't. Not sure what it is but I do tend to get them a lot.

As far as the fainting, I have been collapsing for 3 months now on average 25 times a day. I can just be walking round and fall to the floor although it does happen more during sitting, hence why I haven't been on the forum much. It's been so bad that i've had to pack in my college course I was doing and have now developed RSD in my back from falling out of bed whilst collapsing! I was diagnosed with Reflex Syncope which is something up with the calf muscle that pumps oxygen to your brain and then told it was POTS (Postural orthostatic tachycardia syndrome) which is something wrong with the heart beating too quickly causing your blood pressure to drop at certain times.

I'm on the waiting list to see doctors that specialise in it but they are only at the adult hospitals over here so wont accept me until I am 16 which is another 5 months away

!

My PM Doctor did say that RSD can cause your Blood Pressure to go either too low or too high and the POTS can be caused by Hypermobility so if Lindsay has that it might be worth getting it checked out. Mines believed to get worse when my pain spikes as a way of my body 'coping' so that could have been whats happened to Lindsay.

Please send her my love and if you ever want to talk i'm here!

Alison. x

Miss Ali,
I have been praying for you so much! I miss your sweet little rays of sunshine on this board...I am so sorry that you are in a bad way right now. I told your Mum that I was thinking of you...I had to go on blood pressure meds recently because my pain was so bad that the doctor was afraid I would have a stroke.
Hope you start feeling better

keep smilin · 08-24-2010, 02:57 PM

Quote:

Originally Posted by cindi1965

Miss Ali,
I have been praying for you so much! I miss your sweet little rays of sunshine on this board...I am so sorry that you are in a bad way right now. I told your Mum that I was thinking of you...I had to go on blood pressure meds recently because my pain was so bad that the doctor was afraid I would have a stroke.
Hope you start feeling better

Two things...

First I want to ask how is your rash seem to be doing now???

Second thing..I just want to send you both a hugz...and say I am sorry you are going thru this!

Love, Kathy

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