Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 09-13-2010, 04:23 PM #1
Mycah's Avatar
Mycah Mycah is offline
Junior Member
 
Join Date: Oct 2009
Posts: 84
10 yr Member
Mycah Mycah is offline
Junior Member
Mycah's Avatar
 
Join Date: Oct 2009
Posts: 84
10 yr Member
Default Paula Abdul's Latest Appearance

I'd certainly like to know what RSD medication Paula takes for her to be able to move like this:

http://www.youtube.com/watch?v=HTRsk...layer_embedded
Mycah is offline   Reply With QuoteReply With Quote

advertisement
Old 09-13-2010, 07:33 PM #2
Mycah's Avatar
Mycah Mycah is offline
Junior Member
 
Join Date: Oct 2009
Posts: 84
10 yr Member
Mycah Mycah is offline
Junior Member
Mycah's Avatar
 
Join Date: Oct 2009
Posts: 84
10 yr Member
Default

Looks like YouTube is testing a live chat feature today and tomorrow so connecting is difficult.
Mycah is offline   Reply With QuoteReply With Quote
Old 09-13-2010, 08:33 PM #3
finz finz is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,804
15 yr Member
finz finz is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,804
15 yr Member
Default

lol.....true

Too easy to take pot shots at a celebrity who is photographed out in public all the time, IMO. I've got some pics of me jumping up and down when my son won his league superbowl in football last year. I look normal. No way to tell I had to double up on the Vicodin to get there and that I could NOT go to the post win celebration party.......no accompanying video of the next few days when I had troubled getting out of bed to go to the bathroom. No pics of all of the games that I couldn't even go to........
__________________

.


Gee, this looks like a great place to sit and have a picnic with my yummy bone !
finz is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
cindi1965 (09-16-2010), RNcrps2 (09-15-2010)
Old 09-14-2010, 02:19 PM #4
Jimking Jimking is offline
Member
 
Join Date: Mar 2009
Posts: 879
15 yr Member
Jimking Jimking is offline
Member
 
Join Date: Mar 2009
Posts: 879
15 yr Member
Default

Quote:
Originally Posted by finz View Post
lol.....true

Too easy to take pot shots at a celebrity who is photographed out in public all the time, IMO. I've got some pics of me jumping up and down when my son won his league superbowl in football last year. I look normal. No way to tell I had to double up on the Vicodin to get there and that I could NOT go to the post win celebration party.......no accompanying video of the next few days when I had troubled getting out of bed to go to the bathroom. No pics of all of the games that I couldn't even go to........
Finz, you are correct. My wife has RSD and she goes through the same thing. We have friends and family that just can not grasp the fact that when Suzy lifts something off the ground she can feel it for days ahead. However, there have been some strange things about Paula that don't seem to add up to RSD. They've been discussed on NT before.
http://neurotalk.psychcentral.com/sh...ht=paula+abdul
Jimking is offline   Reply With QuoteReply With Quote
Old 09-14-2010, 03:25 PM #5
Jenna Delaney Jenna Delaney is offline
Junior Member
 
Join Date: Dec 2009
Location: MN
Posts: 50
10 yr Member
Jenna Delaney Jenna Delaney is offline
Junior Member
 
Join Date: Dec 2009
Location: MN
Posts: 50
10 yr Member
Default Really

Does she have RSD?


Quote:
Originally Posted by Mycah View Post
I'd certainly like to know what RSD medication Paula takes for her to be able to move like this:

http://www.youtube.com/watch?v=HTRsk...layer_embedded
Jenna Delaney is offline   Reply With QuoteReply With Quote
Old 09-15-2010, 03:00 AM #6
finz finz is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,804
15 yr Member
finz finz is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,804
15 yr Member
Default

I hear ya JK !

Jenna, "supposedly", she does
__________________

.


Gee, this looks like a great place to sit and have a picnic with my yummy bone !
finz is offline   Reply With QuoteReply With Quote
Old 09-15-2010, 02:06 PM #7
RNcrps2 RNcrps2 is offline
Member
 
Join Date: Nov 2009
Posts: 180
10 yr Member
RNcrps2 RNcrps2 is offline
Member
 
Join Date: Nov 2009
Posts: 180
10 yr Member
Default

I wonder when she was diagnosed-maybe she was one of the lucky ones caught between 3-6months.
Finz you are so right!! A snapshot is not reality. I go to my kids games taking extra meds and then paying for it later, but it is sure worth seeing my kids play!
It is hard for others to understand when they only see what we let them see. momof4
RNcrps2 is offline   Reply With QuoteReply With Quote
Old 09-15-2010, 03:33 PM #8
Jimking Jimking is offline
Member
 
Join Date: Mar 2009
Posts: 879
15 yr Member
Jimking Jimking is offline
Member
 
Join Date: Mar 2009
Posts: 879
15 yr Member
Default

Quote:
Originally Posted by RNcrps2 View Post
I wonder when she was diagnosed-maybe she was one of the lucky ones caught between 3-6months.
Finz you are so right!! A snapshot is not reality. I go to my kids games taking extra meds and then paying for it later, but it is sure worth seeing my kids play!
It is hard for others to understand when they only see what we let them see. momof4
I think Paula claims she's had it for many years.

For the past 3 years my wife has been rejected by SSDI after getting ill with this disease and earning that benefit by working 30 years. Her doctor wanted her to perform an FCE test to determine how bad her full body RSD is. Those performing the test disagreed because the test can not take a snapshot of her true agony. They knew it, my research confirmed it but the doc had no clue. I wrote a letter to the doc explaining the best I could to get this doc to remove this requirement and she did.
Jimking is offline   Reply With QuoteReply With Quote
Old 09-16-2010, 06:07 PM #9
cindi1965's Avatar
cindi1965 cindi1965 is offline
Member
 
Join Date: Jul 2009
Location: West Virginia
Posts: 375
10 yr Member
cindi1965 cindi1965 is offline
Member
cindi1965's Avatar
 
Join Date: Jul 2009
Location: West Virginia
Posts: 375
10 yr Member
Default

I was quite a dancer years ago and danced in 5 inch heels, but NO one I know with RSD could do that now...I love shoes and it breaks my heart that I can no longer wear high heels. First off, I would topple over because of balancing issues. Secondly, I would not be able to lift my feet off the floor....I believe that she does have a problem with prescription pain pills and uses RSD as a way of getting them...I long to show of my still shapely legs with a great pair of black gladiator spikes..they are sooo cute, but short of a miracle that will never happen
cindi1965 is offline   Reply With QuoteReply With Quote
Old 09-17-2010, 01:13 PM #10
kathy d kathy d is offline
Member
 
Join Date: Nov 2006
Posts: 327
15 yr Member
kathy d kathy d is offline
Member
 
Join Date: Nov 2006
Posts: 327
15 yr Member
Default

Hey Cindi,
I was sad as I read your posting about dancing as I was "Born to Dance" and wanted to take ballet/tap again (as wll as kickboxing too) right before this happened so I know your pain. I was always the first one out on the dance floor and could keep up with all the newer dances (I never liked line dances as they were not creative enough for me haha). About a year 1/2 after getting this mess I had to attend my oldest nephew's wedding. It was one of the hardest things I had to do since I had to sit there in my wheelchair in agony the whole time (both physically and mentally) watching everyone I know get up and dance and drink and have a great time. I just sat there and pretended to have fun but inside I wanted to scream and cry. I used to love going out esp to weddings where I could dance but now I don't even want to drive by the building with others (as I can't drive with this mess). It really is upsetting as you well know and I had to donate all my old heels and other shoes I can't wear any more. It was tough and I felt like crying for days but I did it and I know the place I donated to will be happy for them. I was thinking...maybe you could just lean up against a wall and carefully put on those spikes and get someone to take a pic of you in them so you can look at it every time you feel like to show yourself you can do it but just much more carefully this time;.) You can even email it here to show us we can do things too but really much more carefully. At this point, I would be happy with slow dancing (but I need a strong man to hold on to haha)! Hang in there and keep your chin up.

Oh, about Paula Abdul...she has had RSD in the back of her neck for probably 20 years now. It was caused from a cheerleading accident. I know over the years she was addicted to pain pills and hits the bottle a bit at times too so it goes to show that what people see on the outside only for a few minutes is not what is going on in the inside for sure!!! I still have the old People magazine where she explains all she has to go through in order to just go out of her house. And I am sure her house is much more expensive than our house is so she has to work to make some kind of money to support her lifestyle (as we all must)...although I don't have a lifestyle anymore haha. I just know she has suffered for many many years from RSD. As someone already said...we have to go through so much before and after we actually even do one thing but at least we don't give up on some things we love to do like watch our kids play sports. Good luck and hang in there.
kathy d
kathy d is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 06:20 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.