[QUOTE=gabbycakes;700034]I'm sure when Kathy is feeling up to it she will talk about it if she wants to. It's not my place and I don't mean this in a bad way it's just not my place.
Just wanted to let everyone know.

Thanks I totally understand. I hope she is feeling better and resting.

We miss you Kathy.....Get back here feeling good and tell us all about it !

My Dear Rsder Family,
I first want to thank you for all your love, support, and prayers this week as I have sure needed it. I did get my five day inpatient Ketamine infusion late on 9/20 at Hahnemann Hospital. It was hell is all I can say. I had the worst experiences while there. I fell and injured my neck, back, and spine, and hands which made my horrific pain even worse this week. They told my family they would keep me 24 hours longer because my BP was 85/45 (but only kept me 6 hours, took a few xrays, and a catscan and sent me home)and that was because I fell. But they never did and sent me home...without even being able to stand on my own two feet. My poor son had to carry me for over two days. I had to even go to the ER the day I came home from severe agony and I thought I was dying. They gave me some meds there which helped a bit. But when they wore off I was dying again. Yes, I did pray several times this week to die and let Jesus take me from all this pain. Even night I lie away in agony from neck, back, spinal pain. Dr. S never even checked me BEFORE I left the hospital. Most of the staff were very young 20 year olds who didn't really care about being there and were mean to me. I know the Ketamine makes you dissociate with your suroundings but this was ridiculous. I felt like they would kill me if I said anything wrong to them. I threwup, had a bowelmovement, pulled out my iv's 3 times that they told my family and hallucinated alot and had no real runderstanding of what I did and how they happened. They never cleaned me nor brushed my teeth for over 8 days. I was a stinky mess. My poor family and my son we so devastated at what they saw and I thought my son was ready for a breakdown (and is still not doing real good now). Our relationship is now even more horrible than it was before now. This is really the first five minutes I have been able to write anything here and it's been 14 days of hell. All I do is cry and don't want to live in this pain anymore. The RSD was bad enough but the Ketamine sedation has been even worse. NO ONE even called me from Dr. S office or the hospital to followup to see how I was doing because I feel hard. My poor 80 year old widows mother has been here with me for a week and yesterday broke down crying to me saying she was so depressed because I was not getting any better. My heart is so broken right now for my whole family and I only sleep about 2 hours a night (again). The rest is spent praying and crying to Jesus to take me out of all this pain. It's so sad.A man would come in with a tray of warm food each morning and for the first three days I did not eat because I did not know what they were or what to do with them. One day a nurse or someone showed me I could eat the warm bagel which I did for the next few days I was there. But I only ate in the am as I was so drugged out I did not know what to do about it. My arms and stomach area severely bruised from Hepparin shots and IVs too. I can hardly move my hands at all from bad pain. I wanted to tell you all to watch out about these treatments that I had at Hahnemann. It was horrible and I still have nightmares about it. No one called me from Hahnemann or Dr. S office so I finally had to on Wed afternoon and let them know what happened to me. I think they are all affraid to talk to me about the bad time I had there. Dr. S only sent me home with Ativan every 8 hours (2mg) which does crap for me. He said to take only Neurontin and Ibubrophen and nothing else. I was on 25 mcgs of Fentanyl for over five years and this is all I get???? No wonder why I am in so much pain. I think he just wants to detox people there. I don't know but I would NEVER go through that week again like that. Now, I am deathly affraid of having to have booster shots this next week since my horrible experiences. Life is so unfair for all of us...we get the rsd pain and now have to deal with this mess and pain. I've contacted my works comp nurse about getting me somehelp here because mom is leaving today and I can' hardly get out of bed or do anything for myself. Has anyone any other suggestions or ideas for me? I would surely appreciate them all. And thanks my dearest friend Gabbycakes for your supportive phone calls in the past few weeks. It helped me so much to know that others had been there before me too. Thanks for all the prayers and keep them coming.
love ya,
kathy d

Dear Finz,
I just love the jewelry you are making (as well as the other rsders too). Can you let me know how much they cost because I might like to get one for myself. Rings hurt and some braclets are to uncomfortable but I like your style.
Thanks,
kathy d

Kathy, I am so sorry about your experience at the Hosp. We are supposed to get well, not tortured.What's the deal with Dr. S. When I saw him many years ago he wanted none of his patients to suffer from any kind of pain! Dis you ever get to talk to him or a social worker before you were released, to tell them what was going on with your pain? I would report this to the administer of the Hosp. tell them how badly you were treated and that you fell in his Hosp. make sure that this is a private issue and you do not want your name on this, as you may have to go back for you boosters, I'm really shocked that this happened, as Dr.S is a great guy,Are you sure that he even knew that all this wierdness was happening? Again I am so sorry for what happened to you,And I hope you get to feeling better real soon.
Your friend Wendy

Dear Kathy,

Wow!! What a bummer!! I also think that you need to ensure that Dr. S is made aware of what happened and how poorly you were cared for while you were hospitalized at Drexel. No one should feel terrorized while they are in the ICU. I'm so, so sorry.

Please take care of yourself and focus on feeling better. Instead of returning to Dr. S for your boosters, you could consider Dr. Getson. His clinic is only 10-15 miles away in Marlton, NJ. He trained wit Dr. S at Drexel for a long time. And I am certain, from my experience with him, that he will not have a problem writing scripts for the meds that you need to keep you comfortable. If you call his office perhaps they will take you right away based on your situation. 856-983-7246.

Good luck to you. XOXOX Sandy

First I am so sorry for all you are going through. I was hoping you would benefit and get relief. Tomorrow I would call Dr S office and ask to speak to him. The nurse will probably call you back but explain what happened and that you need to speak to him directly. The way you were and are being treated is unacceptable. Did you fall in the hospital?
I'm confused if the first infusion there were not benefits and it was such a bad experience do they still do the booster? Sorry if I am lost. Is Hahnemann Hospital where they do the infusions from Dr S? For some reason I thought it was done at Drexel.
I wish I had more answers and relief for you. If you want an email buddy to listen I'm here. Take care.

FYI - Hahnemann Hospital in Philly was acquired by Drexel a few years ago. Same place and people, different name.

UNACCEPTABLE!!!! So not right..I am so sorry for everything you and your family had to endure.. I am so in agreement..please, call Dr. S's office..speak directly to him..He needs to hear every point and then the next call needs to be Dr. Getson's, Sandy's recommendation..for your boosters to be done...OMG..that is just terrible.. I hope soon you will get some relief and be able to put this experience behind you... ALL WRONG!!

Love, Kathy

Just to clear some confusion up about Hannanhmein Hospital and Drexel University. Drexel is a teaching medical institution not a hospital there is no "Drexel Hospital". There students from what I understand do fellowishisps and residentsies at Hannanhmein and Hosp. of Philly. Dr. S patients go to Hannanhmein. I think the one very different issue with Hannanhmein is that is was brought my Tenat, which I don't know the connection but they are a medical corporation exactly what they do is a unknown towashed me and changed my sheets everyday the care was incredible. I have also me.

I did mine at Hospital for Special Surgery with Dr. Richman, and I saw him 3x's a day everyday,PT came on Wed. to start moving me and would not let me leave until I could walk on my own, I also had 5 surgeries there and the treatment is was the same.

And one more thing I just have to clear up the boosters, which I did with Dr. S after each time I did a 5 day inpatient , Dr Richman does not do boosters, are nothing like a 5 day inpatient infusion. I don't mean to make light of the people who choose the booster route.

Just all be carefull who you let do this procedure to you.

Good luck.

Gabbycakes