Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 09-28-2010, 12:34 PM #4
SandyRI SandyRI is offline
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Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
SandyRI SandyRI is offline
Senior Member
 
Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
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Sorry you are having a bad day. Been there, done that. RSD can be really tough.

You don't say why you are afraid of the ketamine? Any particular reason? I've have 25 low dose infusions since April 19th and I'm in remission (but not perfect). I was able to return to work FT after a one year LOA because of my RSD in June. I hurt myself in 11/2006 and was diagnosed in 6/2008.

Dr. Philip Getson started me on the 10 day out patient protocol and will always be special in my heart - he is just awesome. Getson is located in Marlton, NJ, only 15 minutes outside of Philly and worked with Schwartzman for many years. It is a MUCH shorter wait to get into his clinic than into Philly; however, he only offers low dose outpatient infusions, not the 5 day inpatient treatments.

In my quest for treatment, I also met Dr. Ronny Hertz at St. Luke's in NYC. He is truly a very nice doc and seemed very knowledgeable. And I tried to get an appt with Richman or his partner - they are reputed to be EXCELLENT. They wouldn't accept my insurance so I couldn't get into the Hospital for Special Surgery in NYC even for a consult.

I would encourage you to try to get yourself in front of the best of the best ASAP. The sooner you are treated the better your chances for remission.

Any questions, please let me know, the best of luck to you, Sandy
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