Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 11-01-2010, 08:35 PM #2
AintSoBad AintSoBad is offline
In Remembrance
 
Join Date: Mar 2009
Location: Eastern PA.
Posts: 1,143
15 yr Member
AintSoBad AintSoBad is offline
In Remembrance
 
Join Date: Mar 2009
Location: Eastern PA.
Posts: 1,143
15 yr Member
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Lori,
Thanks for writing this thread.
I've had RSD since '83. Not diagnoses for 7 years.

But,
I've got to say, like the old saying we are what we eat, sometimes, we are the side effects of what we take.

I for one, HATE any pill I must ingest.
I take methadone for pain, the only side effect I notice, is constipation, if I don't get enough exercise.
I take Cymbalta, anti depressant, and some pain relief for nerves. (not much though).

Valium, to reduce the reaction to pain.

Imetrex for migraine.

Zanaflex, if I really hurt myself, and, occasionally to help sleep.

CPap, which is a total PIA!
(With O2)

I do keep Tums around, along with the anti diarrheal. (forget the name).

And, Lidocaine patches, for four herniated discs, two neck, two lowback, and my arms, hands. (TOS)

I've been tossed and crushed in two MVA, one involving a T-Bone by a Semi with trailer, and another where I was front seat passenger, and another driver blew a stop sign.
bam, head injury!

I'm a total mess, and sometimes, don't feel so lucky to be alive. But. of you're one of faith, as I am, ,I feel that I still have work to do here.
And, I'm trying!

It's difficult.

I must say, that I try to take the least amount of meds necessary, and that does not always work to my advantage (depending on what you think an 'advantage' is).

So You see, that you've kind of 'nailed' a universal question.
Is it me? The RSD? (Other injury), And what are the meds Side effects?

WE ALL ask ourselves these questions.

For most, it's much better to take the lowest dose acceptable regularly for our illness and pain, as opposed to prn. (as needed). Because usually prn, is too late.
Then the side effects spike.

I suggest that you work with your doctor, to get on a 'minimum' regular dose.
Then, have an acceptable amount available for 'breakthrough' issues of pain, or otherwise.

I've been doing this for 20 years + now.

I hope you can figure out which meds cause you side effects, that cause you to take another med, that might not be necessary.
This is key, to some sort of sanity with this disease.

I wish you ALL the Best!

Pete
asb
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loretta (11-05-2010), Wilbyfree (11-02-2010)
 

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