Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 11-05-2010, 05:12 AM #6
SandyRI SandyRI is offline
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Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
SandyRI SandyRI is offline
Senior Member
 
Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
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Hi Dee -

I doubt my docs would ever go to 1000 or 1200 mg. WOW. Do you have any side effects from such a large dose? I noticed that I was having horrible dreams after my dose was first increased from 150 to 200, but they seem to have subsided now.

I need to work FT, and the last infusion I received was in the middle of the week, so I had to return to work the next day - talk about exhausting!!

Thanks for the info. Take care, Sandy


Quote:
Originally Posted by DeesRSD View Post
Hey Sandy,

Sorry bout BI, I had heard it was hard to get into there but I somehow got lucky and was one of their first ones to get the infusions there, only problem was, is that the doses were low and I had to go back every 2 weeks.

My RSD doc in NH was Dr. Ralph Beasley, that man is a genius, but due to NH laws, he couldn't do the infusions he knew I needed, and Im thinking he must of had something to do with me getting into BI....my memory just isnt what it used to be...

My current dosage as far as I can remember, and I may be wrong, is between 1000-1200 mg, I will know for sure when I go back in a few weeks or I find my old records ( shamely Ive lived here in AZ for a year now and I still have boxes to unpack ) it is a higher dose and I think he comes close to the fine line that is set for ketamine

After the first infusion, I spent the next 6-8 months learning to walk again and getting out of that wheelchair. My therapy can make it possible for me to go 8-12 months without getting another infusion. Dont get me wrong, I still hurt but I am better able to tolerate it. I do not take Methadone any longer though which always did worry me....but thats just me. My doc doesnt make any guarentees but I figure what do I have to lose?

Hope I was helpful and sorry for any typos, talk soon k
Dee
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