Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 11-11-2010, 08:32 AM #6
lorigood243 lorigood243 is offline
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Join Date: Jul 2010
Location: Northern Virginia
Posts: 224
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lorigood243 lorigood243 is offline
Member
 
Join Date: Jul 2010
Location: Northern Virginia
Posts: 224
10 yr Member
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Im so sorry for your suffering!

i have abdominal RSD. i had 3 surgeries and i have over 70lbs of swelling on my abdomen. 3 years ago when there was 45lbs of swelling...a plastic surgeon thought it would be a good try to cut it all off so they cut me hip to hip and removed 25lbs of tissue (sorry to be gross) but it nearly killed me, i died and they brought me back. then the swelling grew back with avengence! so now i have 70lbs of swelling. i takr prednisone and imuran to try to control the inflammation. i know they are working bevause when i try to ween myself off them i swell even more. i never had a workmans comp issue so i cant help there. i work from home sitting/laying on my bed and sell office supplies. i had a career in this before i got sick and my boss lets me work from home...
Soft hugs to you too!
Lori
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