Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 10-16-2011, 12:58 PM #17
Truffle Truffle is offline
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Join Date: Oct 2010
Posts: 8
10 yr Member
Truffle Truffle is offline
Junior Member
 
Join Date: Oct 2010
Posts: 8
10 yr Member
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Quote:
Originally Posted by lovefamilypets View Post
Hi Holly,

I too did not have a good experience with Dr. Prager at UCLA. He didn't listen to me and ended up making me worse, plus he is so expensive! This was 6 years ago that I saw him so he probably has learned a lot since then.
Right now I am seeing a Neurologist in La Jolla, Ca that I really like. Her name is Dr. Nancy Sajben. We haven't had any luck so far, but she spends a lot of time with me and is one of the most compassionate doctors I have seen.
I hope you find a great doctor who helps you into remission! Best of luck!
HI -- I'm wondering how your progress has been of late with Dr. Sajben for RSD. I just read about her approach using a combo of meds that no other doctor appears to be doing [naltrexone, namenda, lamotrigine] and patients are ultimately weaned off them. I am looking for a new doc in So Cal area, have already tried ketamine and HBOT with little success. I don't believe in SCS and am not anywhere near being a candidate for this but docs keep pushing it as part of their agenda...therefore I'm not interested in seeing Dr. Prager at UCLA, etc. Thanks!
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