Hi
I've been tossed all over the medical field in the last year and a half or so, nobody can identify what's wrong with my hands...finally, I and my therapists think that I have found it. RSD or CRSPS. I will be seeing my doctor soon to see where she sends me next. So painful, but the steroids do help. I eased off of the and WOW, forgot how much pain my hands caused, disproportionate to anything I did.
Look forward to getting to know you all. I am a licensed artist/designer and musician. Can't play any of my guitars now.
Any and all responses are so very welcome. My husband is in hospice in our home. He was a Firefighter and is dieing of Chronic Rejection of a transplanted lung.
Love,
Pam

Could it be a repetitive motion injury?
Makes me wonder when you mention "artist/designer and musician" those are hand & posture intensive uses.

You might want to read on our thoracic outlet forum {TOS} for info on that possibility.
The useful sticky threads are like a crash course of info- all in one place- from the web searches by members.
TOS forum useful sticky - http://neurotalk.psychcentral.com/thread84.html

Most of the forums here have stickys of collected info - they are located above the main threads list with the green circle icon w/arrow on it.

If you are able to describe your symptoms we might be able to help point you in the right direction.

TOS is another of the mystery conditions and quite a few of the symptoms can overlap with RSD.

Hello Pamella Ann,

Welcome to NeuroTalk !

Dealing with RSD and everything that's going on with your husband sounds like a HUGE challenge. I hope that you will find some support here to help you through this trying time. My prayers for both you and your husband.

Hi Pam and Welcome,

Quite a battle your fighting. We have some things in commone so I can relate to the frustration with not being able to play guitar. My husband,son and daughter all play an instrustment my husband and son guitar and my daughter keyboard/piano and she just got a keytar for her 16th birthday, she loves it. Anyway my husband at 48 just recently has had a problem with his right hand out of the blue he doesn't have RSD or anything but he was dumb founded that after 35yrs he just could not play. I think he might have carpel tunnel and he has been wearing the splints, I happen to have one and it has helped. So I can understand your frustration. I'm sure they have tested you for Carpel Tunnel already? I hope you can find some relieve and a proper dx's.

We are also caring for my husbands mom you has Stage 4 Lung Cancer. She is in some type of remission since her Chemo but stage 4 is stage 4 so we just are taking it day by day.

Good Luck.

Gabbycakes

So sorry

Have you been checked out for rheumatoid arthrtis? My twin has that, and I went through a battery of bloodwork and other tests with a rheumatologist to rule out RA or anything RA related before my RSD diagnosis was finalized. I'm just mentioning it because when you talk about your hands I think of Suzy. Her hands are where she suffered the most with her RA when it first started.

The very best of luck to you and your husband. Please take care of yourself. Sandy

Dear Pamella,
I am so sorry to hear about all that you are going thru. I know how hard it is to have so much pain and not know what is wrong. But I can tell you, that know matter what they found, you have found the right site for support. The people here are very informed and have ALL been in your very place you are in now. YOU ARE NOT ALONE!!!

You and you husband are in my prayers,

May God Bless you with Peace and Rest

Renee'

Dear Pamella Ann

I am SO sorry you are going through this and I am lifting you and your husband up in prayer. May you find the answers you need, the treatment that will give you relief and your husbands body to accept the transplant. we all have our own challenges but here together we get more strength to go through each day. Post often, you can help someone here too!
Blessings
Lori