Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 12-12-2010, 11:22 PM #1
Lisa in Ohio Lisa in Ohio is offline
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Lisa in Ohio Lisa in Ohio is offline
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Thumbs Up SCS Trial

Hi Friends, I just wanted to let you all know that this past Tues. I started my SCS trial. I have not felt this good in a very long time, over 8 years. I am just thrilled about this. It will come out on Tuesday, and then I suppose that there will be another long battle with WC over the permanent implantation. I just wanted to put out my good news and hope that someone here will be encouraged by some good news. Blessings to all, Lisa
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Old 12-13-2010, 01:19 PM #2
lovemydog lovemydog is offline
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Oh that is excellent news. I had always been hesitant about SCS implantation because you hear good things and bad. I am thrilled that the trial worked out so well for you. Here's to hoping everything at WC goes smoothly and quickly for permant implant!
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Lisa in Ohio (12-13-2010)
Old 12-13-2010, 05:53 PM #3
SandyRI SandyRI is offline
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Good luck Lisa!! Keep us posted....

XOXOX Sandy
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Old 12-14-2010, 06:53 PM #4
Albie Albie is offline
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So glad to hear your trial is working. As far as WC the biggest part of your battle should be over. It took me 8 months and a mediation conference to get the trial approved and as my Doc explained to me that once they approve the trial, if it works, they are almost forced to approve the perm. My trial was a huge succsess and I was immediately approved for the perm which was done 2 weeks later. Best of luck and not to worry your biggest battle should be behind you.

Happy Holidays!
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Lisa in Ohio (12-15-2010)
Old 12-15-2010, 10:49 AM #5
leiea leiea is offline
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Quote:
Originally Posted by Albie View Post
So glad to hear your trial is working. As far as WC the biggest part of your battle should be over. It took me 8 months and a mediation conference to get the trial approved and as my Doc explained to me that once they approve the trial, if it works, they are almost forced to approve the perm. My trial was a huge succsess and I was immediately approved for the perm which was done 2 weeks later. Best of luck and not to worry your biggest battle should be behind you.

Happy Holidays!
hi
sorry wc and perm?
im thinking of the scs trial....which things would you try before the scs?
xxx
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Old 12-15-2010, 08:16 PM #6
Lisa in Ohio Lisa in Ohio is offline
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Hi Leiea and welcome to this great group of people. I was not diagnosed very early with what ended up being RSD. I have been on a cocktail of various pain medications for over 8 years. Before the trial, I have had 8 surgeries on my arm with bone grafts from both hips and a total wrist fusion. After my RSD diagnosis, I did not have a very good PM doc and she just pushed pills. I found a new doctor and fortunatly he is very aggresive with treatment. I have had several injections and stellate ganglion blocks. I then had the SCS trial which ended yesterday. It was very successful and I had really great results. I have not had much time to keep up with everyone since I am back in college, so I don't know anything about your story, but I hoped this helped a little. Lisa
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Old 12-16-2010, 01:46 AM #7
finz finz is offline
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I understand the WC frustration hon !!!!!!!

I hope the SCS works out for you Lisa. I've read so many horror stories on here about the SCS, I admit I'd be hesitant to try it. On the positive side though, I find my TENs to be very effective, but have issues with constantly sweating off the leads, so an iplantable one seems like it would solve that issue.

Best of luck with this !
__________________

.


Gee, this looks like a great place to sit and have a picnic with my yummy bone !
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Old 12-16-2010, 11:21 PM #8
Lisa in Ohio Lisa in Ohio is offline
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That is almost exactly the sensation that you get with a SCS. After a while I didn't even notice it but did notice how much better I felt. My arm and hand were warm again, alot of the burning was gone, I didn't have any spasm episodes and the skin looked healthy. What great changes, much worth the discomfort of the trial site.
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