so besides all the cold sensitivity and swelling, color changing, and just plain pain i've noticed a new symptom and was wondering if i'm alone.
i keep my phone set to vibrate. a long hard vibration so that i can realize its going off. i've noticed in the past few days that if its sitting on my bad leg then i can't feel it go off. i'll be watching it go off and still can't feel it. if its on the other leg in the same spot i can feel it just fine. so is numbness a normal thing?
while i'm at it, i was walking (house style with my awesome homemade cane) and noticed that on my really bad pain days that putting weight on the ball of my foot would cause my toes to curl under (like a new born reflex) does anyone have this problem as well?
thanks and low pain days

Hello Fairlight,
I have those curling issues and the feeling they are beginning to cramp if I move my foot certain ways. I walk on the back outside edge of my feet because of swelling, so I seldom put weight on the ball of my foot. And I have a lot of numbness, especially while sitting, but it is more like my foot and lower leg are in a constant state of waking up after what we would call 'being asleep'. I don't wear shoes or socks unless required by law, oversized slippers are my footwear of choice.

have a quiet day,
gramE

I have trouble with one foot going into spasm & toes turning under, too. I get relief from Zanaflex, a muscle relaxer. What also helps is reflexology, if your feet can tolerate the pressure. By putting pressure on certain trigger points (I use my thumbs or small balls) I'm often able to manage to release the spasm myself.

I kind of have the same thing, but only when I get knots on my leg...if I start to get the knots, I feel all kinds of different sensations. The worse for me is walking and my leg goes to sleep. Crazy RSD....we are all like snowflakes, no two people have the same symptoms at the same time!

I have lost feeling in two of my toes and if I sit with my leg down for long the whole limb will go numb. All it takes is about 10 minutes. The beast has worked its way into my hip and flares into my opposite limb..I watched that video with Dr. Prager the other day and something caught me by surprise. He stated that when one limb gets the RSD it automatically starts in the other right away. This is due to the limbic part of your brain. Has anyone heard of this theory?