Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 02-27-2007, 09:19 AM #21
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Quote:
Originally Posted by Brokenwings View Post
Hi Hubby with RSD-- hre is the link to that article....

http.//www.rsdfoundation.org/test/AMA.html

Many, many eperts in the field consider Dr. Fitzpatrick's criteria for RSD "THE BIBLE"--DESPITE how the ICs keep trying to make the criteria almost IMPOSSIBLE to meet (gee, no surprise, seeing how COSTLY the treatment is...)

Also, the web-site discusses the use of patches, etc., etc under the "treatment" section, as well as promising new treatments.

Brokenwings
Hon, I can't find that article any way I try to google, OR by using that link. Is it my puter, or has that link been taken away for some reason???? Can you try to find it online again, and freshen up the link? I'm VERY interested in reading it. I also googled the search criteria in your other post, and can't find it that way either
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right Side TOS Decompression Surgery 12/2005
RSD Exacerbated after surgery
Still have TOS on left side
RSD On right side, currently in hand, forearm (underside), shoulder, chest, to hollow of throat, and in left hand creeping up into left wrist
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Old 02-27-2007, 09:34 AM #22
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nikmcjo, Its rsd kitti my name is Karen I wanted to say welcome and hi, when I read your message I felt like it was me.I have the same with water,wind,and
I didnt sleep under the sheets intil a year ago I spent on top of my bed for almost 3 yrs. I couldnt do the water when I was going to phyiscal therpy and it made to orse for me to. I pushed it through the pain day after day for 1 1/2 twodifferent places and nothing except it got worse so the dr made me stop and I havent gone back but when I take my bath because I cant stand because I still have my cast on plus the shower I cant handle the water spraying on me. But everyday I take my bath I hold my bath and Im purple up initil the middle of my chest now I motice its bad but I have to do something Im not going to give up somedays I want to but I dont because of my son.So I understand total and Im scared is not me I worked for hospic Im not the one that needs help I dont have any right now but I need it. Im doing the best I can day to day mostly I cant get out of bed into my wheelchair. I need to push and push and find things that feel good on me its hard but Im going to talk to my dr about what Brokenwings said about the injection because I have had the different injections stemaltor and the mophin pump and it didnt work for me I have scar tissue problems but I will try anything. I will let everyone know what happens on Thurs when I see my pain specialist for my meds. I wake up every couple of hours crying at night from the burning on the bottom of my feet and other places but I will let all of you guys know wht happens but Keep going and keep trying we are in this together Brokenwings have made me feel like I have people that cares especially Brokenwings. Email me anytime. Keep in touch Take Care best wishes to you. Gentle Hugs Karen Im sorry I have to go and get some sleep. And say good bye to my son for school.
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Old 02-27-2007, 09:37 AM #23
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That Was One Ofthe First Treatments I Tried And It Was Torture And Did Not Work. I Cringe When I Think Of Those Days.
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Old 02-27-2007, 09:38 AM #24
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I have tried also and cant get it either please let me know to rsd kitti my name is Karen Thank you. Gentle Hugs
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Old 02-27-2007, 09:38 AM #25
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Quote:
Originally Posted by LisaM View Post
Hon, I can't find that article any way I try....
Spot the difference!
http.//www.rsdfoundation.org/test/AMA.html
http://www.rsdfoundation.org/test/AMA.html
et... voila!
all the best

Last edited by artist; 02-27-2007 at 09:42 AM. Reason: added quote..
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Old 02-27-2007, 09:42 AM #26
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lisam....

i think this is the article:

http://www.rsdfoundation.org/en/en_c...uidelines.html

hehehe...or i see artist probably found the right one.
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Old 02-27-2007, 10:26 AM #27
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Im talking about the Brachial plexus Bolck Info. Thanks !!!!!!!!!!!!!!!rsd kitti (Karen)
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Old 02-27-2007, 10:53 AM #28
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Hi Artist--oops! Well, THANK YOU for fixing the link to Dr. Fitzpatrick's article!!!

RSD Kitty--I am trying to find some info for you re the brachial plexus blocks that Tayla had desribed. In the meantime, have you pulled up the link in Artist's post yet? If you do, you will be able to pretty much navigate the rsd site. I too, am just learning how to do all this research on the P.C., and I found that site pretty interesting!!
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Old 02-27-2007, 11:01 AM #29
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Wow, that article just BLEW ME AWAY! They are saying that in order for the dx of rsd to be recognized by the AMA, there must be 8 of those of those criteria met? Like the article states, I don't know of ANYONE who meets 8 of those criteria, and if anyone DOES, then by that time, they are miles away from being able to be helped! That's ludicrous!

I'm shocked. Totally shocked. I can't believe that. And when it was pointed out to the proper person, it was ignored, still. How terrible is that?
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Visit My Message Board - Helping Custodial Parents Collect Child Support From Deadbeats for 7 Years
.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ~~
right Side TOS Decompression Surgery 12/2005
RSD Exacerbated after surgery
Still have TOS on left side
RSD On right side, currently in hand, forearm (underside), shoulder, chest, to hollow of throat, and in left hand creeping up into left wrist
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Old 02-27-2007, 12:29 PM #30
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Hi Lisa--yep--ALL EIGHT symptoms, and they "MUST be CONCURRENT".
Never before has such STRINGENT criteria been applied--and this is especially aggregious if you have a WC claim in California. Thanks to SB899 and all the "cost cuts", diagnosis and treatment must adhere to AMA Guidelines and ACOEM Guidelines. IWs who have been dx'd with RSD by their Primary Treating Physician are inevitably sent to either an AME or QME, who will, of course, say that the IW does NOT have RSD....so the IWs treatment plans get YANKED by the IC...

NOWHERE in the scientific literature, EXCEPT the AMA, does a patient have to have all 8 concurrent symptoms; just symptoms "AT SOME TIME", because, as we have all found out, the symptoms can "wax and wane", etc., and this is especially true if we have been FORTUNATE enough to get some APPROPRIATE TREATMENT!

And--according to the AMA, a good response to a Stellate Block is "no longer the Gold Standard" in CONFIRMING the dx of RSD!!!!

Its ALL about MONEY--as we have found out, treatment for RSD is VERY COSTLY--the Insurance Co's DON'T WANT TO PAY--so the cost is "shifted" , eventually, to either PRIVATE medical coverage or MEDICARE (who, by the way, does NOT apply such strict criteria, and you don't need "pre-authorization" for TREATMENT)....

And, if you were unfortunate enough to get injured in California AFTER SB899, there is a NEW Permanent Disability Rating Schedule, and guess what? Since "pain is subjective", RSD is "not ratable"; the MOST you can get is a 3% "pain add-on"...

Pretty INTERESTING.....
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