Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 01-12-2011, 07:24 AM #11
SandyRI SandyRI is offline
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Try to find a warm water pool, or a therapeutic pool, to exercise in. They are awesome!! Our municipality has one located in the same facility as their indoor pools. The temp is set in the mid-90's. It warms you all the way through, I used to love going there before I returned to work (usually I was the only one there younger than 65!). Also - sometimes larger health club facilities or physical therapy groups have warm water pools available.

Take care, Sandy


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Originally Posted by gabbycakes View Post
Hi Deb,

Thanks for the info. on the water temperature at your "Y" you did mean 86 degrees? I only ask because the few times I have asked them to increase the temp at the "Y" I go to,they keep it at 82, they tell me they can't raise it higher then 82 degrees. 82 is just to cold for me it just makes my whole body just lock. But I love to swim and be in the water it help's so much. My home is on a lake front piece of property so I do swim in the August when the lake gets warm enough and it's just great. I look at that lake today and it's got at least 8 plus inches of snow on it and it's snowing here unbelievable it's hard to believe I actually swim in there.

Thanks for the info.

Gabbycakes
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gabbycakes (01-21-2011)
Old 01-15-2011, 07:16 PM #12
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I have had systemic RSD for over 8 years now and was confined to a wheelchair for the first 6 of those years. I had a excellent experience with Dr. Rhodes STS treatments. I tried numerous meds, LSBs, epidurals, morphine pump, 'experimental' meds, spinal cord stimulator, etc that did not work before I traveled to his clinic.

If you would like to know more about Dr. Rhodes or his treatments, please pm me for further info.
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Old 01-21-2011, 07:49 AM #13
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Personally I was not helped one bit by Dr Rhodes. It cost a TON of money and offered me no relief. I am reluctant to say more as there is a Facebook group and a Duchennes Muscular Dystrophy Group that he is going after. Apparently he does not advertise about success with RSD any longer but is working with the DMD group and they are unhappy with the money/results as well.
I know that there are some who swear by him but for me, it was a waste of thousands of dollars and his claims to take back the equipment that you are required to buy proved to be untrue.
I find it interesting that he has lawyers contact unhappy patients who tell their story; apparently there are a lot of them.

Betsy
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Old 01-21-2011, 03:13 PM #14
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Originally Posted by betsykk View Post
Personally I was not helped one bit by Dr Rhodes. It cost a TON of money and offered me no relief. I am reluctant to say more as there is a Facebook group and a Duchennes Muscular Dystrophy Group that he is going after. Apparently he does not advertise about success with RSD any longer but is working with the DMD group and they are unhappy with the money/results as well.
I know that there are some who swear by him but for me, it was a waste of thousands of dollars and his claims to take back the equipment that you are required to buy proved to be untrue.
I find it interesting that he has lawyers contact unhappy patients who tell their story; apparently there are a lot of them.

Betsy
I am sending my machine back after 4 months with no success and tons of money wasted. He said he will reinburse me...lets see what happens. I was so sure he would help me so I am very sad as I feel there is nothing left to try

Debbie
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Old 01-26-2011, 12:59 AM #15
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I am sorry that you have not had positive results. Some respond faster than others, depending on past meds and treatments. I know that some respond the first day, while others might take a few years to notice progress. In my case and other patients, the progress has been somewhat slow and gradual.....not a quick fix, but I am willing to be patient. Progress does not always happen overnight for everyone.

As a young pediatric patient with RSD, I suffered needlessly for years. My body has been damaged from med interactions and multiple surgeries from a young age. Now, as a young adult, I realize that I cannot live with side effects from meds and the long recovery of these surgeries. This is an alternative that I have found to be useful in my recovery. I want to live life to the fullest extent.

The expense does seem to be steep at first, but compared to my other previous treatments, it is actually not as costly as I had anticipated.
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Old 01-28-2011, 08:26 AM #16
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Originally Posted by debbiehub View Post
I am sending my machine back after 4 months with no success and tons of money wasted. He said he will reinburse me...lets see what happens. I was so sure he would help me so I am very sad as I feel there is nothing left to try

Debbie
Good luck to you. I see that his website has changed drastically and he really does not mention RSD anymore but is touting muscular dystrophy (DMD). But I spent a little while on their boards and they are VERY unhappy with his claims and some are threatening legal action. I did happen to speak to a lady who had RSD years ago and went to him. She is furious about how much he bilked her for (over 10k) and claims that he filed claims for her insurance for additional leads she paid cash for.
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Old 01-28-2011, 03:33 PM #17
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From personal experience I want to tell all of you that Dr Rhodes regularly monitors all boards and is not shy about sending letters from his lawyers. Everyone is entitled to their OPINIONS but keep in mind he is fairly litigous.

But my OPINION is that I wasted a ton of money.
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