Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 02-28-2007, 08:12 AM #1
rsdpainradar rsdpainradar is offline
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Default Bob Woodruff and TBI's on ABC

I know this is going to sound hash and I don't mean for it to, please cont to read and you will see where I am going with this, I do wish for cont progress for Bob Woodruff and all others that have been injured and are fighting to make progress and return to their normal life or at least be able to return to their maximum potential possible.

For the last 2 days, I have seen so much on TV about Bob Woodruff and the veterans that have encountered TBI's (tramatic brain injuries) at war. They are reporting about how difficult it is for the injured to get their correct medical care and extended therapy needed and how they come back from war, only finding it difficult financially and that many are going bankrupt.......Many are also complaining it takes "so long - days even months or a year" to get approved for disability. Many injured from war with families that are fighting for them seem to prevail and get more treatment and therapy to assist them in working through their disabilities so that they are able to return to a somewhat normal life but for those that have no family little is offered and often little progress is often made, leaving many unable to perform even their simple daily functions without assistance of others.

Now from what I understand....since this has been brought to public attention by Bob Woodruff's unfortunate injury and his recovery process (being an ABC employee sure didn't hurt his chances of getting the best treatment either)
the president is now heading to the forefront of this topic to make sure all injured from war TBI's will get the treatment they deserve. Numerous times during televised programs, it has been mention how these injured, were just "doing their job".

This is the type of public attention that is needed for IW's. It's a shame attention can't also be given to the fact that Bob Woodruff is an IW not a soldier. This is what many of us have said would have to happen for IW's to get the attention needed. If the same attention could have been directed to the IW's and their RSD, can you imagine the progress that would be directed toward its treatment and research?
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Old 02-28-2007, 12:36 PM #2
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Dear rsdpainradar,

I am so sorry. But I want to beg of you not to give up.

Do NOT ever loose the fact, you were 100% STABLE when you went in. You were given several injections before going over the gulf RIGHT? Just a hairdressing guess but the injections would really make your immune system weak.

Do you feel ill at all?

I hope to God that you get the help in anyway you can. One of my son's was in the Gulf in the last war. Love and Hugs, Roz
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Old 02-28-2007, 12:42 PM #3
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Come on bloats.
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Old 02-28-2007, 12:57 PM #4
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Default Hi,

I saw Bob Woodriff on Oprah yesterday. At least he is fighting for something he believes in but I agree where are the fighters for the people that served in the Iraq War and other wars.

My brother served in Vietnam and died from the Agent Orange. He couldn't get any help he needed to get better. He died at 56. I also lost a freind to the agent orange. His wife got his first check the day he died.

There are just not enough people out there fighting for a lot of these causes that should be delt with. I've always said I wish we could find someone famous to get the ball rolling with RSDS. It takes a famous person to get that attention or a person with a lot of strength to fight the government for what is needed.

Ada
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Old 03-01-2007, 01:57 AM #5
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Default Lucky guy

I say he is one lucky guy that couldnt keep his head in the tank!
He really kinda deserved what he got, goin over there and then not keeping head his down. Tsk tsk.



I agree he is doing a good thing, BUT! There is a hell of a lot more injuries besides head injuries, and all of them are having the same trouble as we are getting disabilty. Face it, the government is all about putting money in the pockets of themselves, and special interests. We dont matter.....until we dont pay our taxes on time.

/steps off the soapbox

He and the news are just doing what they always do, skew it to their opinion.
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Last edited by allentgamer; 03-01-2007 at 01:59 AM. Reason: left out a word or two
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Old 03-01-2007, 02:04 PM #6
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No one deserves any such injury. l feel that is bitterness talking. Saying such things does not take our rsd away .... God bless all.
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Old 03-03-2007, 11:57 AM #7
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I Knew I Would Get Flack For My Comment, But I Stick By It.
I Feel For Anyone Dealing With Ssd. I've Been There, I've Also Fought Ltd. I Am No Stranger To Pain. I Was Born Diabled, I Was Abused For It, And I Fought To Be 'normal', Marrying, Having Children, And Grandchildren, One Who Lives With Me Now ... Getting An Education And Becoming An Icu Rn. I Had My Life Ripped Out From Under Me Just Like The Rest Of You, But I Do Not Believe It Knocking Someone Else Down To Make Myself Feel Better Or More Intitled To The 'system'.
No Matter How Someone Gets To The Point Of A Painfilled Life .. And That Man Was Doing His Job ... No Matter How You Think He Should Or Should Not Have Been Doing It .... And He Has Suffered And Is Now Where He Is. So, I Repeat ... No One Deserves Such A Thing. If Anyone Said You Deserved Rsd, For Whatever You May Or May Not Have Done In Your Life, You Would Not Take Kindly To That. Let's Stick Together ... Those Of Us Who Suffer And If This Man Now Brings A Positive To Spin To The Returning Vets And Their Plight, Then We Will Know His Tragedy Was Worth It All.
Joan
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Old 03-03-2007, 07:21 PM #8
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Hi Joan,

I have a small request, would it be possible to type your posts without the capital letters at the start of every word? As u know, many of us have blurry vision - RSD and meds both seem to bring it on.....I'd love to be able to read your posts but I find that style so hard to focus on, can really only manage a line or two, then I lose it.....if it's a problem, then just type all small letters..is that possible?
Sorry to have to ask

Hope your pain is less today,
all the best!
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Old 03-04-2007, 07:49 PM #9
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artist,
sorry, i always write in all capitals, easier on the hands to type, and for some reason this site has it come up as each word with a capital ... i don't know why. but thanks for reminding me, i believe you mentioned it on my very first posting here. i will try my best to remember to switch to the lower case when i write here. sometimes the brain fails! joan
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Old 03-05-2007, 03:41 AM #10
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Red face Im Sorry

I wasnt lashing out at ya Joan. It is newsman like him that made our jobs difficult. We would get into situations like being able to ride with soldiers, or other very unique areas, and guys like him would come along and ruin it.

You see, he was being careless. There are rules for everyone to follow, and he was breaking them. You can be sure that it will not be so easy for news people to get into areas that they once could because of his John Wayne antics.

Since he got hurt, now he is focusing on what happened to him, and others like him. Sure that is good, but it is like throwing the baby out with the bath water. That kind of damage is around 5% of the injuries incurred in Iraq. What happens to the other 95% that isnt getting the lime light? The government would love for him to disappear, or would they? With him focusing on the 5%, it leaves them to stiff the rest of them. Unless he broadens his scope, and shines the light on the whole problem.

Maybe I should wait to write about anything that means a great deal to me until after I am on some form of pain meds
Kinda hard not to get excited about things I care so dearly about when the pain has me on edge already. I dont mean to run anybody down, or make anyone feel bad at all. The government has stiffed sooo many people, and used the media to help that cause so much that I dont trust any of them.

I didnt mean to make it sound like he deserved what he got either. It is more like when you play with fire you get burned attitude that I have. When you fully know all that could happen, and you put yourself into the situation, that is different from you and I. No way did you put yourself in harms way to accidentally get RSD, and neither did I. Circumstances just jumped out and bit us. Sure it jumped out to him also, but he knew that the chances were risky, and also was warned right on camera that the area he was passing through was exceptionally dangerous, and to put his head down. He just couldnt resist sticking his neck out so to speak.

Why does it always take stuff like that to get everyones attention? More people are afraid their kids are going to be kidnapped today because of the news. When the news person asked the kids. Which is more dangerous, visiting a friends house with a pool? Or visiting a friends house that owns a gun? The kids said the one with a gun! More kids die by drowning per year than by being shot by a friends gun. In fact you can prolly count all the gun shots in one year on one hand, but you dont have enough fingers or toes to count the hundreds of drownings a year.

Why is it you ask? Because the news only reports sensationalism, gunshots are more news worthy than drownings. Then the government gets involved with this fear, and begins a campaign to remove guns from every person. Did you know that a kid is more likely to get picked up in a tornado then by a kidnapper. That is true!

Wonder why there is no laws against tornados??

Well anyways, sorry if I offended anyone with my rant against these partners in crime, and sorry if it came off like I was glad that woodruff got hurt. Just wish folks wouldnt be so gullible, and see through the smoke screen the government and media throw in front of us everyday. They know they are shaping our opinions and beliefs. It just gets to me that we walk right down the path they lay out without ever questioning the facts.

It also gets to me that because of our sheep mentality, even the ones that question these things are pushed to follow the crowd, and get into trouble when they speak out, nobody wants to hear it. It is like swimming against the current.

Im done, and want everyone to know that I am with all of ya! Wont swim against the current....it hurts to much

Love all of ya!
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Last edited by allentgamer; 03-05-2007 at 05:33 AM.
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