Originally Posted by whereisfunkytown

I'm new to the forum, but have had CRPS for four years. Last spring I had a SCS implanted and was able to go off my narcotic meds (Fentanyl, oxy, and morpheine), but when winter hit I had to start taking codeine. It's not covering the pain now and I was wondering if anyone has had any luck with Ketamine (infusion or daily med)? I really don't want to start down the narc road again, them having been truly taxing on me physically and emotionally.

I'd like to know what experiences people have had with pain relief, effect on sleep (if any) and if anyone experienced any side effects. Also, is there a detox with ketamine? I'd like to be able to discontinue it for the summer as I'm financially strapped.

Thanks!

Alice

Originally Posted by rsdpoppa

I have had three ketamine infusion treatments and for me it has been a true blessing to be pain free. The treatments do wear off and for me it takes three to four months. I did reverse my last one by being in a small room when a band had their amps turned up. I have full body RSD and can not tolerate loud music. my doc is Steven Pulley MD in SLC which is a hour flight for me.

Originally Posted by SandyRI

Do you mind if I ask how many days you get your ketamine for each time? And how much you receive in each dose? I would love to be able to go 3-4 months between infusions...

A bad stomach bug reversed the effects of one of my infusions over the winter...it was awful, because I am no longer on heavy meds. My doc told me infections will often do that.

Andrea, thanks so much for posting more info on oral ketamine. I plan to ask
my doc if perhaps taking it for a few days after my infusions could help them
last longer.

XOXOX Sandy