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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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"Thanks for this!" says: | Jomar (03-22-2011) |
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#12 | ||
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steve6561, When i had my stellate blocks my Dr. told me they do help block the RSD cycle early on but if your RSD has become SIM(sympathetic independent pain) it wont help. That is why it is important to have blocks done early on. I know I had relief but not completely and by my last block i didnt get much relief at all. So just because a block doesnt work doesnt mean you dont have RSD.
You have the right to ask/tell the nurse to wait outside while you see the Dr. and then she can read the chart. A lot of Drs dont want the w/c nurse in there when they are talking to you. They can make the Dr. feel uncomfortable talking with you. If you get an attorney they will tell you dont let them in they can read the chart. |
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#13 | ||
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So, I finally told the case mgr. that she wasn't allowed in the doc's office with me. She said I had the right to do that and it was fine. So, I'm waiting in the office for the doc to come in, and hear the case mgr. talking with him, saying that she feels like I am taking too much pain medication. I hear him say to her, "So what are you wanting?" My heart dropped, as my suspicions of that case mgr. working with the ins. co. were finally proved. Now this is what I am taking, Neurontin 300mg 3xday, Vicodin ES- 1 to 2 every 4-6 hrs. as needed, and otc ibuprofen. The funny thing is that every time i get a new script, i have some leftover! I can understand that some people over do these meds and get addicted, but she straight-up called me an addict! So to make a long story short, I was taken off the vicodin, and told to take tylenol or aleve, and when I asked what if this wouldn't help, the doc's nurse simply replied, "well, then you will just have to be in pain"! Anyway halfway through the visit the case mgr. walks right in. I told her that I wanted privacy and she replied "you are finished here anyway" and the doctor sat and did nothing!
Then she asked yet again if this rsd could've flared up from 2 yrs ago when i broke my wrist, and the doc said there is no way to tell, but judging from my medical reports from the prev. injury, and evaluation by a pain mgt. doc whom said there was absolutely no way any chronic pain synd. was present, which i agreed. The only problem i had is they put a small pin in and from the incision, my skin was numb for a long time, and hurt now and again. The surgeon said this was normal due to the pin and the fact that i was on pain meds for 8 months consecutively, so i had "desensitized". Anyway back to the story at hand, the doc i saw told the case mgr. that if the prev. docs said i didn't have it then, then that was that. She kept repeating like a broken record, "but its possible right, but its possible right?" The doc said in these words, "anything is possible, but as for you and the ins. co. are concerned in a court of law if you cant prove one way or the other, but now the person has a condition from the latest injury, with a diagnosing doc's testimony, the decision will be in the injured person's favor most likely!" She seemed very upset and unconvinced. So, anyway thats whats happening now. If anyone has a good suggestion for me let me know! Thanks |
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#14 | |||
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"Thanks for this!" says: | Jomar (03-22-2011) |
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#15 | ||
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WC is EVIL! I find it unbelievable that a system that was set up to protect workers now does the most harm to them. I wish that I had back all of time I spent waiting for approvals, hearings and WC doctor appts. I am pretty sure that I would only be 46 instead of 50. Lisa
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"Thanks for this!" says: | SandyRI (03-23-2011) |
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#17 | |||
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Co-Administrator
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You might feel better after telling them off
![]() ![]() Just thinking - antagonizing them might make for more problems down the road.. the system is tough enough without making an enemy. But I do think once you have an atty they should stop contacting you , unless it is something the atty OK'd an the atty should send a letter telling you what's happening. more or less. I usually would receive copies of correspondence between my atty & the wc ins. Definitely don't chit chat w/ the case manager, or your HR person at work, or anyone at work if you still go there or visit, as any of them might be loose lipped or even misspeak, and word will get repeated even if only by accident. I just think it's better to keep mum on the wc case/claim, as well as any other activities at work or to anyone that might talk to coworkers. TOS is not well known either and many symptoms do overlap with RSD - and many have both conditions, so if your pain & symptoms are mostly located in hands, arms and shoulders, neck it might be a good idea to read about it on our forum. here is the link to the useful sticky thread , it has the main TOS medical websites & info sites listed in post # 1 - and much more info in the other posts too. Thoracic Outlet Syndrome Our Useful Links - Websites, Articles & Polls http://neurotalk.psychcentral.com/thread84.html Just in case you find it fits, or, if you might have both TOS & RSD then you need to have it added onto your claim as well as get proper treatment for it.
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Search the NeuroTalk forums - . |
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"Thanks for this!" says: | SandyRI (03-23-2011) |
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#18 | |||
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Senior Member
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So very sorry that you have to deal with this all. I know that what you are saying brings back a lot of memories. It's just there game. Keep at it, vent to family and your lawyer and here, but just keep it professional with the case manager. I can tell you that nothing aggravates them more than you staying profession...the crazies don't know how to react to normal behavior.
Keep fighting for treatments to relieve your pain. You have the right to have your pain taken seriously. Don't read too much into your doctor asking what the case manager wants...that's a trick we even use in retail to get the crazies to shut up. Doctors don't like to deal with work comp any more than we do. That's why you need to fight for your treatments. Pain goes up, you go back to the doctor and tell them. They need to help you. I know narcotics never helped with my pain so maybe the doc had other reasons for taking you off besides the work comp lady. There are other medications and it is all about finding the right "cocktail" so to speak. My first doc got it right on the first try...second doc switched everything and the pain went over the top (neurontin was absolutely useless for me). So maybe try asking the doctor for a different set of meds if the ones you are on don't help. That way it sounds less like "drug seeking" and more like you just need the relief and are willing to try anything. Read up on different things and bring in a list of things to go over with the doctor so that you can discuss if any of them are right for you or worth trying. This shows that you are really committed to getting relief from your pain and the case manager can't fault you for doing that. Good luck with everything. All I can say is just keep at it...don't settle...and you will survive. I know it doesn't help with all the added stress...but you just need to keep at it and try not to think about them and focus on your treatment. Again...so sorry that you have to deal with any of this. I wouldn't wish it on the people I hate most in this world. |
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Sonny, I just try to remember that these people are just doing their job, like you and I did when we could work. I was in your angry place once, and once I thought it through it relieved a lot of stress. Like my grandma always told me, you can catch more flies with honey... Lisa
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