Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 03-27-2011, 04:47 PM #5
SandyRI SandyRI is offline
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Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
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SandyRI SandyRI is offline
Senior Member
 
Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
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I take 200 mg Topamax a day for migraine control. My RSD is in my shoulder, leg, neck and up the back of my head. Once I tried to taper off of it, and my migraines came slamming back. So I went back on it. I also discovered that my migraines were very hormonally linked. So I went on the pill. And that has helped a whole lot. Now I generally only get really bad head pain when I use my arms too much, or after my ketamine infusions. I can usually control the bad headaches with Frova, a triptan med similar to Imitrex. On a daily basis I take a lot of Fiorcet for mild head pain, which I have ALL the time.

Anyone on triptans has to careful of their hearts - there can be some scary side effects of these meds. because I take Clonodine, a beta blocker, I am protected. But you should read the paperwork that comes with them just to be sure you understand exactly how they work and the risks are.

Topamax doesn't put weight on like the other anti-seizure meds. When I was on Neurontin I gained 10 pounds in just a few weeks. It was awful.... I can't say that I've lost weight on it, either, I lost a lot of weight when I was on the opiods.

Good luck, Sandy
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