I know this has been mentioned off and on over the past few years but I can't find any mention of anyone having had a DBS implanted.

So... is there anyone out there that has a DBS for RSD?

If so, who is your doctor and where did you have this done?

I've done numerous searches and can not find any doctors.... the majority are using DBS for Parkinson's and some are or it appears to be in the beginning phases for MS.

I guess you can say I am at the desperate phase of wanting to end this pain.


Abbie

Abbie -

DBL can be dangerous stuff, when they say deep, they mean deep. And all the while you're conscious so they can test your responses. Patients have literally bled out in that condition.

The newer, gentler approach is Motor Cortex Stimulation. Check out this thread Motor cortex electrical stimulation: a promising therapy when all else has failed http://neurotalk.psychcentral.com/sh...d.php?t=145341

At last report there was at least one clinical trial in the recruiting stage. However, I don't have any "names" beyond what's in the thread, including any links that appear therein. I have however heard that Stanford is not currently using the technique, at least on any CRPS patients.

Mike

Hey Mike...

Thank you for the information!!!

I hope it comes to fruition and maybe a standard protocol for those with upper body RSD/CRPS!!

Unfortunately for me... I have full body involvement with my lower body being the worst but upper body is closely following on the pain scale.

Medications either have no effect or adverse effect on my pain... SCS was tossed around but that scares me for various reasons.

Thanks for the information... Even though I'm not sure it's for me... I'm going to take the info to my doc and see what he thinks.


Desperately seeking pain relief...
Abbie