Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 04-08-2011, 05:47 PM #11
Teresa Marie's Avatar
Teresa Marie Teresa Marie is offline
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Join Date: Apr 2011
Location: Minnesota
Posts: 25
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Teresa Marie Teresa Marie is offline
Junior Member
Teresa Marie's Avatar
 
Join Date: Apr 2011
Location: Minnesota
Posts: 25
10 yr Member
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Hi Dan

Having been diagnosed with RSD almost 6 years ago (feels like 100) the one thing I've learned is that when the pain tries to overwhelm me it's time to stop the cycle. One of the other replies mentioned Mindfulness Meditation. Let me tell you that above all the meds, docs, and procedures this type of meditation has saved my life. Getting to the point where you are, you need to get in touch with yourself. As someone else said, when it doesn't feel right, it isn't. RUN.

Getting diagnosed early is critical. I had nerve blocks done on both my ankles and it was a nightmare--won't go into that now. See if you can get someone to mix up a batch of ketamine and amytriptaline cream to put on your back. Or if that doesn't work, try lidocaine patches. These both are topical.

Please let us know how you are doing. I look back on that first few months and remember how scared I was. We are all here to help.

Teresa Marie
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