2 editorial fixes for the list above (we should tell Jim Broatch):
Richman is with Waldman at the Hospital for Special Surgery.
The Camden, NJ number above is actually the number for Getson in Marlton, NJ He used to also be at Cooper Hospital, which is in Camden.

Dan,

We all get very frustrated when doctor's "don't act like we want them to". Be mindful that they deal with all walks of life daily and need to protect their license to practice medicine. My doctor's always tell me they wish they had more patients like me who are afraid of and wont take narcotic medications. My sister was labeled in all local hospitals as a "drug seeker", so they know her game....me complete opposite, maybe seeing my family struggle with addiction has steered me the other way, not sure.

But any how, if you truly feel there is going to be a problem with this doctor, try and find another one first. It is hard to find doctor's to treat this beast and throwing F*** bombs around will not make it any easier. I currently treat with a PM Dr. who is very rude however, I am trying to overlook it and get some relief. Could I switch? Sure, but saying she was rude probably won't get me far with a new Dr. They stick together and usually won't go against another Dr., so think of that for future medical treatment needed.

We can all get pissy and hot headed, but remember, we are only hurting ourselves, causing flare ups and causing our doctor's to be extra guarded when treating us. If you have a legitimate, medical complaint that is another story, by all means run and run fast.

Hang in there, we are here for each other!!!

My daughter is in Syracuse. I think you will see ketamine there before you know it. Also...this is only ONE list. There are plenty of other doctors who do it.....you just have to search. I would join a bunch of the RSD groups on FB if you want to learn more.

I wish I knew where there was a more comprehensive list available of ketamine providers. I have heard that there are more docs in New England other than those that are included on the RSDSA listing that Jim Broatch has so generously provided every time I have requested it. There are many southern New Englanders who would love to try ketamine for their RSD, but cannot afford the price that the only RI doc charges. And the Beth Israel in Boston shut their doors to new patients several years ago.

Thanks Betsy. XOXOX Sandy

well.........................
first of all, go to a teaching hospital. they are trying newer things. second of all, get admitted for pain control. that is the easiest way to get it done.
and really, do go to FB and join some groups. I see names on their all the time.

the bad thing is the list is not complete. the good thing is it is not complete because more and more doctors are using it!!!!

I am covered - I am trying to get help for others our support group. and I have spent much time doing the above and more...thanks so much for all of your advice....Unfortunately, not enough of them are getting the help they need in southern New England and it's so frustrating.

Thanks again, Sandy

Hi I am sorry about your pain. The block I had increased my pain but it did settle back to where it was which was hell but not as horrid as the flare as the block gave. My pain doctor said that the pain probably is not stemming from the spine then. I have had very little success with meds and I take no narcotics now but even ones like neurontin. I have gotten a few opinions from pain docs. I always encourage others to as well.
As for ketamine I think if one does it and I have not but have read a lot and same with my mom that it is important to see someone who deals a lot with rsd. I feel that way about pain docs in general and treatment providers be knowledgable about rsd.
When I went to a day program for pain at Cleveland Clinic some had issues with med addiction. I really feel for people who do. I think regardless if this is or not an issue therapy can help in general to cope.
As for the doctor I am sorry that you were treated that way. I agree that one no matter how upset they are must remain calm in front of them. It is ok to say how you feel but must be done in a proper way. Most of us have heard things from docs that make us want to scream but taking a deep breath and having a plan either to see someone else or explain to the doc in a calm way how you feel is important.
Hang in there and I hope you can find a doc to help you