Originally Posted by gabbycakes

Dan,

Sorry to here you felt treated so badly. PM is a funny business it can be a great help and or it can make you worse. You want someone who is going to watch out for you in regards to medications. To me thats a smart doctor anyone can write a script. So my advice to you is to take it down a notch and try and work with this doctor if you and your Mom think he's good and can help you. There's not a respected PM Doctor who will work with anyone who is arrogent and nasty. They are to affraid of losing there license. Unfortunitly, many abuse there medication, use it recreationally try and get in sooner, thats not what PM is. You stated you where an athlete, if I where you before you go to your appt. today move your body if you can even if you walk 25 feet in front of your house/apt. and try and relaxe. As an athlete you know how good your body can feel when it moves. Exercise for me is something I have to do everyday to beat this beast. I go to gym 3 times a week and walk the others I can't do everything but if I didn't do it I would be misreable. I could not do all this when I was going through 7 surgeries, 3 ketamine procedures etc. when I first had my accident. My problem in upper extremety so it's easier but I do have a slight spread of RSD to my back like I stated in my first post.

I told you before I have a 20 yr old son he was also a althete from 7-18, played ice hockey. We traveled around the Albany area all the way to Lake Placid. He hasn't picked up his stick but for 1 time since his last varsity game he just had had it. But the point is he feels the effect on his body from not working out all the time, being on the ice 7 days a week blah, blah. The point is excercise helps RSD. When you get time today look up Dr. Sherry in Philadelphia. He is a pediatric RSD Spec. He has a very interesting take on RSD and how to cure it,especially for young people up to 18. I believe the University of Chicago is working on a simular treatment for adults. Just read it.

I see alot of my son's friends who I have heard display behavior such as you described in your post.Again my son's know angel but never displayed that kind of behavior. Its tough for young adults today I definitly get it but there's no excusse for that kind of behavior. First it increases your stress which will flare any kind of medical condition not just RSD. So like I said before take it down a notch, try and get some kind of body movement so you feel a little better before you see this doctor today. If he is willing to work with you,you need to show him you are responsible.

Dan, good luck today. You need someone to work with you so you have to work with them.

KEEP US POSTED.
Gabbycakes

Originally Posted by RSD_Dan

I read your post before my appt just didn't have time to respond. I calmed myself down doing what I could exercise wise and breathing techniques, and took a 1mg klonopin.

The appointment was ok, although at the beginning I told him I would be going back to my original neurologist and (Dr. Argoff) who referred me in the first place. I also told him I was displeased with his attitude and treatment towards myself, a patient and his customer. He responded by saying he wanted to make sure I was not drug seeking, and then went on to say that he would like to still try and work with me in some manner.

He then went on to say that he would not prescribe me any narcotics or muscle relaxers as I had tested positive for THC (no **** sherlock, I had stated that I am an occasional user of cannabis from time to time on your little sheets and before you even gave me the **** test, so what was the point?). Not that I want to be on these things forever but they help a little for now. He did give me a script for pool physical therapy which I asked for and know I need.

At least I have an appointment with Dr. Argoff and he has enough time now for me to be a regular patient, and he also is a friend of my mothers and her boyfriend (who works in oncology at the same hospital, Albany Medical Center). This guy is also a lot more reasonable and friendly, and doesn't wear oakley reading glasses and $7,000 suits to work like that other @$$.

Thank you all for your help and support it has been a real life saver, I wish I could comment on all your posts and reciprocate a little more right now but I have to go, thanks again.

-Dan

Originally Posted by RSD_Dan

I read your post before my appt just didn't have time to respond. I calmed myself down doing what I could exercise wise and breathing techniques, and took a 1mg klonopin.

The appointment was ok, although at the beginning I told him I would be going back to my original neurologist and (Dr. Argoff) who referred me in the first place. I also told him I was displeased with his attitude and treatment towards myself, a patient and his customer. He responded by saying he wanted to make sure I was not drug seeking, and then went on to say that he would like to still try and work with me in some manner.

He then went on to say that he would not prescribe me any narcotics or muscle relaxers as I had tested positive for THC (no **** sherlock, I had stated that I am an occasional user of cannabis from time to time on your little sheets and before you even gave me the **** test, so what was the point?). Not that I want to be on these things forever but they help a little for now. He did give me a script for pool physical therapy which I asked for and know I need.

At least I have an appointment with Dr. Argoff and he has enough time now for me to be a regular patient, and he also is a friend of my mothers and her boyfriend (who works in oncology at the same hospital, Albany Medical Center). This guy is also a lot more reasonable and friendly, and doesn't wear oakley reading glasses and $7,000 suits to work like that other @$$.

Thank you all for your help and support it has been a real life saver, I wish I could comment on all your posts and reciprocate a little more right now but I have to go, thanks again.

-Dan

Originally Posted by gabbycakes

Dan,

I went back and read you post and just 2 more things. Be carefull with the klonopin it's a benzodiazapan and can do more harm than good, trust me.
And 2 I wouldn't worry about cannabis on a urine sample. Most if not all test new patients just to make sure there not doing other drugs. Cannabis is being percribed in NJ and about 15 other states as treatment for RSD and other medical conditions.

Dan like I said I have been in PM for 7 years. I have seen some crazy things just while sitting in the waiting room and I can see why these doctors are paranoid. Some people just act crazy when after they tried to get over and lost. If someone walked into my office and behaved in such a manner I would just call the police they end.....

Gabbycakes

Originally Posted by RSD_Dan

I appreciate your concern but klonopin has been a godsend for my PTSD and anger issues. It's much better than the laundry list of SSRI's, SRNI's, Anti-psychotics, and amphetamines that I was prescribed when I was younger, those things made me suicidal and I won't even begin to go into the horror of that whole situation.

Plus I don't have to take it every day if I don't feel like I need to. I know there's concern for psychological (and physical) addiction. But you gotta understand you're talking to someone who's tried almost every drug you can try, has lost control, and regained control. I know what's best for my body and what's not. If it weren't for all this country's stupid laws I would be an excellent pharmacist, I'm a strong advocate for self-teaching especially when it comes to putting substances in your body, I never take a drug from a doctor before thoroughly researching it, same goes for when I was in my experimental stages.

You're a kind lady Gabby, your son is blessed to have you as a mother.