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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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04-07-2011, 10:08 AM | #1 | ||
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Hi my name is Dan and I'm a 20 year old male who was in good health until a work related injury followed by a injury playing basketball caused a bad bone bruise and a tear in my illiotibial band. After the doc realized I was in much more pain than I should be and noticed how sensitive my skin had become to touch, he referred me to pain management.
Yesterday I had a sympathetic nerve block done on my L3 vertebrae (feel free to correct me if I'm getting that wrong) and the back pain has become unbearable, they plan on doing 2 more next week but I'm afraid.. From what I've read this isn't always the most effective treatment and the back pain seems to be spreading to my entire lower back, and is quite severe, I can barely bend or twist and riding in a car (even a whole day+ after) is incredibly painful. Could this be a sign of RSD worsening? And what other treatments are most successful? I am currently on lyrica and endocet, which help somewhat but not entirely.. I also am on anti-anxiety meds which help calm my brain a bit cuz I'm kind of freaking out. Any suggestions/advice is much appreciated. -Dan |
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04-07-2011, 10:17 AM | #2 | ||
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05-31-2011, 08:14 PM | #3 | ||
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04-07-2011, 10:37 AM | #4 | ||
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04-07-2011, 10:42 AM | #5 | ||
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I'm a huge advocate of ketamine infusions...the sooner the better.
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04-07-2011, 08:24 PM | #6 | ||
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The fact that you are young, and were diagnosed reasonably fast are on your side.
It sounds like the book 'Break Through Pain' by Shinzen Young may be of help. fmichael recommended it to me years ago... He is one of our most informed forum posters. It has a small book and a CD and is around $20. Shinzen explains how to use Mindfulness Meditation to help with the pain. I have had RSD ten years now, and it has helped me more than anything else has. For some reason, most medications have not helped me much. I think when you first get RSD, it is darned scary, and this book really helped me take the fear away from being in pain. Juli Last edited by daylilyfan; 04-07-2011 at 08:25 PM. Reason: Typing error correx |
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04-08-2011, 11:13 AM | #7 | ||
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Many will disagree probably, but I do believe in SOME cases blocks can and does cause spread. I have seen it!!!. If I were in your shoes (if i could wear shoes lol) I would run away FASt from any more blocks. Just my opinion. Fondly-Carol
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04-13-2011, 07:15 AM | #8 | ||
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I am a29 yr old that was recently diagnosed wih CRPS afterhaving a foot surgery in October. The burning is horrible and nothig seems to help. IDK what else i can do I, my insurance ran out in jan so i am kind of limited to the extent of whats available. I am on several meds but no relieve. Can you nexlain to me what is ketamine treatments and where do you get them????" does anyone know if this ill ever go away??? I am miserable i now walk with a cane, somedays in my wheelchair due to the burning is so bad....help...
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04-14-2011, 07:41 AM | #9 | ||
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04-08-2011, 11:55 AM | #10 | ||
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Hey Dan,
Anytime you feel those "freaking out" and "afraid" emotions it's time for a 2nd opinion. If you don't feel right about a treatment or procedure, take a time out and try to get to another doc. I think repeated SGB may have caused my RSD to spread to my right leg. But I will never know for sure. The RSDSA has a link to board certified anesthesiologists and PM docs. Jim Broatch (the Director of the RSDSA) also is maintaining a list of ketamine docs. Do your best to get to highest quality PM center in your area. This is a good place to start your search for another doc: http://www.rsdsa.org/4/resources/spe..._websites.html RSDS.org also has a ton of other great info on CRPS. Also - if this is a work related injury, make sure that you have a lawyer. Worker's Comp can be a real hassle. Good luck and keep us posted. XOXOX Sandy |
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"Thanks for this!" says: | RSD_Dan (04-10-2011) |
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