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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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![]() ![]() ![]() ![]() ![]() ![]() ![]() ![]() ![]() ![]() ![]() ![]() ![]() ![]() ![]() I had a headache pretty bad this morning, and still do but it is getting better. Letter said my first check will arrive on May 11. Only 30 percent get approved on first application. God is my Provider. And hopefully this will give hope to others with RSD. I did take info on RSD to my medical exam and the dr asked if she could keep it. I had printed some things off of the puzzles. I am not going to be destitute next month. Hallelujah. I called my Doc because he said yesterday they would never approved me on my first try. Oh, how little his faith is. We serve a mighty God!
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#2 | ||
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It sure is a relief, isn't it? Congrats!
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"Thanks for this!" says: | gramE (04-07-2011) |
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Congrats! What a relief! I have been denied twice and am waiting to get a hearing scheduled. It would be such a blessing to not have to worry about my financial situation as much. I just keep hoping that I get miraculously better. Boy wouldn't that be nice. Take care!
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"Thanks for this!" says: | gramE (04-07-2011) |
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Grame that is wonderful news! I bet your pain level dropped a notch just for that alone!! I just received my denial letter this week, but I am appealing and that is ok. My CRPS diagnosis came after the original SS application, so maybe that could be added as a disability for me. I try to stay positive and am grateful that my husband is able to carry the finances (not sinking....just rocking right now). I meet with my attorney on Tuesday. He handles both WC and SS, so I got lucky there!! (Even though I have to "retain" him separately)
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Live, Laugh, Love~ . |
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"Thanks for this!" says: | gramE (04-07-2011) |
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#5 | ||
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GramE
![]() I was approved for RSD also on first try... but I had some other things like peripheral neuropathy too.... and years of documentation of steady decline in mobility and health. So happy for you! Juli |
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"Thanks for this!" says: | gramE (04-07-2011) |
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#6 | |||
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I'm old too, so I figure that played in my favor. But as we all know having been approved is good, but I still can't walk more than 2 blocks or so, when I try what little housework I can do 30-45 min and I could enter my feet in the boiled lobster contest, I wear 2 size larger shoes than before the accident, I have to wear leggings all the time to keep my sensitivity down, I'm actually up to showering twice a week and getting dressed 3-4 days a week which is more hours than I sleep at night, which is about 2 1/2-3, I can't sleep in my own bed, I can't sit on the floor with my grandchildren, the slugs on my sidewalk beat me to the curb because my walking speed is slim to nil, I only wear shoes when required by law, I can't wear nylons(ok, i'm old enough that we did wear nylons all the time, besides even wearing a short skirt would just draw attention to the fact that my legs are purple, oh, let me count the ways that every thing I do every day is determined by the condition/attitude/size of my ankles/feet. Due to my short-term memory loss issues, I'm pretty sure I've forgotten at least a half a dozen things that inhibit my activities I did before the accident.
I am grateful that my application was accepted, I am overwhelmed with sadness because I did qualify. I know everyone here understands that, but a couple of people seem to think I've won a prize and should celebrate. I am grateful to God that I am alive to enjoy the husband, children, and ten grandchildren and all my friends who help me, but the 1289 dollars a month does not give me back even a portion of the quality of life I had sixteen months ago when a gentleman in a hurry thought he could disregard the road sign that gave me the right away. No amt can reimburse me for the depression and anxiety that cannot be measured. I'm an optimistic, upbeat, love life, the glass is half full, we can always find something positive to say, but I don't feel like celebrating that I will never be able to go back to a job I loved. I am relieved that the Dr who examined me could "see" my pain. I try to start my day by counting my blessings, and today I will add the fact that I have an income now that I can again care for my husband. Sorry, if this sounds like a rant, the ability to come here to neurotalk has been an important part of my adjustment to my new limited, but full life. Sorry, I gotta hurry off, I have six games of words w/friends going on and I'm in desperate need of a pot of tea! Thank you all for you friendship, support, encouragement but especially for the validation that was no where else to be found. Finding this site is worth celebrating! Thank you Lord for leading me here. my heart is full of gratitude for all I have, I pray you all have a day where you see God's beauty, GramE
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. Last edited by gramE; 04-08-2011 at 06:46 AM. Reason: I didn't change nuttin' but I did forget a bunch of stuff! |
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#7 | |||
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I had a wonderful doctor for my physical, and part of my issue is when I'm nervous I stutter and can't remember words. So I took a lot of info written down so if she asked me a question I couldn't remember or get out we could look at the paper. I took a sheet that just had descriptions of RSD/CRPS on it and she even asked if she could keep that. I didn't take one of those wordy things that take a lawyer to interpret. This was a simple diagram type thing of how it starts and how it progresses. And a clear list of symptoms. It sure didn't hurt that on the day I went every symptom I had decided it did not want to be over looked and show itself pretty good. Physically it was not one of my best days, but I guess it was a good day to have an exam. In fact I was down for about 10 days after that. I think most was stress.
But I think Sonny asked if it lowered my stress or pain level. I tell you what it did do. Everyday I wake up and try to deny that I have anything wrong with me, like I'm making it up. Somehow this letter has said to my heart, 'see, I told you something was wrong.' GramE
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#8 | |||
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I'll tell you JimKing, those who are relieved are the relatives that my husband and I were going to start having to live with or at least eat supper with every night.
God is good.
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#9 | ||
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YAY Pat!!
i am so over joyed for you my dear friend! God has delivered his favor upon you. you are so right, he is our provider. never give up, always have hope. may many more blessings come your way! hugs Lori ![]() ![]()
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Wishing you a day of pain free movement that turns into forever! |
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"Thanks for this!" says: | gramE (04-07-2011) |
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#10 | ||
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I am 28 years old & was approved on the 1st try too for RSD, quick process!!! I think lots of good documentation from several different specialists/hospitals is very important. Such good news for you!! Congrats!!!
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"Thanks for this!" says: | gramE (04-07-2011), lorigood243 (04-07-2011) |
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