Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 04-18-2011, 11:01 PM #1
ddd15 ddd15 is offline
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Join Date: Apr 2011
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10 yr Member
ddd15 ddd15 is offline
Junior Member
 
Join Date: Apr 2011
Posts: 6
10 yr Member
Default Need a little advice, daughter struggling

Hi everyone. I know with the wealth of experience on this board I will get some good advice....My 15 yo daughter has been struggling with RSD for 2 years. She was doing OK for a while but the past 4 months have been going downhill quick. She has pain in both legs, her ribs, and her shoulders...and headaches EVERY day. We have an appt with a pedi. pain mgmt in another city in about two weeks. We are kind of in between doctors at this point. As usual, we thought we had a good one until he said he was out of ideas time to move on. Anyway, my daughter is asking for a wheelchair. She is laying on the couch or bed about 90% of the day. She "can" walk, but obviously it is excruciating. I feel like a wheelchair might at least get her off the couch more. I know "move it or lose it" but she's not moving it at this point because she's never getting up.

What do you all think about using a wheelchair....are they necessary at some point?

Thanks for our opinions.
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