Thank you all for your input it is much appreciated, my b/f has had nerve blocks, spinal stimulator's, TENS, meditation & although that helps a little it's only short lived, many pain meds little if anything has worked well enough to give him relief,in the latter half of last year he had morphine injection for the morphine pump trail & that caused it's own set of problems, from hallucinations to panic attacks, & pain so intense when it wore off that he wanted to die,so he doesn't want to go ahead with it, even the slow release pills he takes are not having the desired affect for long enough & they cause him bowel problems by binding him up. Add to that he now has diabetes due to the RSD from lack of exercise, heat & humidity leave him reeling, as does bad weather. ED which is causing him stress since he no longer feels like a man should. testosterone injections make the RSD even more excruciatingly painful. He suspects he may have either an enlarged prostate or worse yet cancer, & he is waiting for a doctors appointment.
My b/f has little faith in his pain management doctor, as the doctor told him that liquid morphine is NOT addictive. If it was NOT addictive then why is it a government controlled drug & why are so many people the world over addicted to it.
He also feel that if he says that he is having suicidal thoughts that they will just right him off as a head case no more said. It took him four years to even get any doctor to consider that he has RSD, & even then he in effect diagnosed what he had himself, then it was later confirmed. in the last eight years it's been a constant roller coaster, almost all of his family & friends have long since abandoned him. When I came into his life he had all but given up, on himself on life & on love.

I just want to be able to help him in any way possible, but trying to find out the things I need is like being lost in a maze.

Thank you all for your thoughts & ideas, bless you all, it helps to know that I have somewhere I can have a voice & with any luck be able to feel useful to someone I care so much about.

Meekobindi

I am one of the ones in the STS discussion thread. Dr Rhodes' lawyers have sent me a cease and desist lawyer so suffice it to say, these comments are my OPINION only, which legally I am allowed to say.
My OPINION is that the machine did not work for my daughter, my OPINION is that South Texas Innovative Medicine did not offer me my money back when asked. My OPINION is that Dr Rhodes will not release my medical records to me, my daughter and two medical offices that have requested them. Enough said!

But after two fairly hopeless years of watching my daughter in extreme pain and agony, what has finally given us hope is ketamine infusions. She has been pain free for what will be six weeks tomorrow and on Thursday my heard was singing. My all state volleyball daughter went on the court and played volleyball. I can't say when I have ever been happier.


What I will say to all is that now that my daughter's pain is relieved we are struggling. The doctors say it is post traumatic stress disorder. It has been such a long tough two years and now that our lives are not filled up with medical appts, pills and ER visits and sleepless nights, we have time to reflect on all we have been thru. So to all (including my family), I would definitely recommend counseling to help you process all that is RSD.