Dear FRxxxxxx -

(Sounds like a bad abbreviation on the title of a German matron, doesn't it.)

Seriously, your description of agony from sensory overload is on the mark, as awful as your experience is, and I'll confess, much more extreme than my own. That said, at my worst times, I too can't stand the sound of the TV or the touch of my 9 year old son - who just wants to give me a massage - even though I don't have any allydonia per se. It's the essence of the vibratory experience that's the problem. Fortunately, I'm able to simply bear down with a lot of meds and that usually takes care of the issue, but then again I'm not a university student, having to get my work done. As ill as you are, you continue to amaze me.

Mike

Hey Mike..

Everyone is different - for me, i can stand to wear stuff and can just about tolerate touch etc - but the sensory is worst and living at uni sure doesn't help it! Sounds like you feel similar to me! - when mine is bad all i want is silence, darkness and nothing moving.. (so instead I live in student halls......mm. clever one there hey?)..

in a bizzare way l'm glad you have the TV issue too - my friends always think I'm so bizzare because of having alot of problems watching TV etc. I'm lucky though, i can cope with the radio, I know others that can;t.

I think that sensory overload (with me anyway) causes more set backs/ replases/ flares than overdoing it... just cos my nervous system then goes insane. I think.

Hope you're ok! Any thoughts for a better name?
Love

The amazing bouncing frogga

xxxxxxxxx

better?! LOL though then again....

Hmm... do you think any of this could be related to me having trouble at times iniciating movement of my left leg?

Hey IHH

I guess it could be.. all the neuro issues with RSD are messed up.. the list is endless of what could be causing it. If you are worried about it it might be worth getting a neuro to check it out.. but as they don't understand the aetiology of RSD they are unlikely to find much (in my understanding). When do you start Aqua therapy? lots of people find that really useful. Also, with your toes have you tried thinking about how to move them before trying? my dr swears by it - doesn't work for me... but thought I'd pass it on any way... (well, it does to a degree. but I can't think I'm walking! and then walk.. which is the results I want!).

the amazing non bouncing frogga xxxxx

I haven't found a pool yet, unfortunately, so I haven't started anything in the pool...

I try and think about putting all my effort into moving my toes... hasn't really helped. Though maybe that along with the PT has been what is helping me to move the toes on my right foot. Toes on my left won't budge! It's strange-- sitting there and looking at my foot, and not being able to move at all! Like, how in the world did I lose the ability???!! Crazy RSD!

Hope you are feeling at least somewhat better. Thanks for all your help and thoughts!