Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 06-12-2012, 02:03 PM #11
Breezy55 Breezy55 is offline
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Default Nail Changes/Problem's with Teeth?

I also noticed that my nail's grow so fast,that it is hard to keep up with them. My left hand is weaker than my right hand. I cannot cut my finger nail's on my right hand. I have to have someone do it for me. My hair is also thinning and many piece's come out when I brush or wash my hair. I have heard that using a shampoo with Keratin in it does help. I am in the last stage of RSD now. I was wondering if anyone has been having problem's with their teeth? Since RSD is nerve involved I have had chipping and craking of my teeth. Since I am on SSDI my insurance will not pay for a dentist. I have lately really been racking up alot of bill's. Fortunately my dentist is letting me pay off my bill's in monthly installment's. Does anyone have a suggestion beside's brushing your teeth and flosing(SP?) I am using a Sensodyne tooth paste with fluoride. If you know anything that would help me out I would so appreciate it!! Thank's Breezy55
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Old 06-12-2012, 02:08 PM #12
Breezy55 Breezy55 is offline
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Default Nail Changes/Problem's with Teeth?

[QUOTE=Breezy55;888288]I also noticed that my nail's grow so fast,that it is hard to keep up with them. My left hand is weaker than my right hand. I cannot cut my finger nail's on my right hand. I have to have someone do it for me. My hair is also thinning and many piece's come out when I brush or wash my hair. I have heard that using a shampoo with Keratin in it does help. I am in the last stage of RSD now. I was wondering if anyone has been having problem's with their teeth? Since RSD is nerve involved I have had chipping and craking of my teeth. Since I am on SSDI my insurance will not pay for a dentist. I have lately really been racking up alot of bill's. Fortunately my dentist is letting me pay off my bill's in monthly installment's. Does anyone have a suggestion beside's brushing your teeth and flosing(SP?) I am using a Sensodyne tooth paste with fluoride. If you know anything that would help me out I would so appreciate it!! Thank's Breezy55 One last quick question,how many of you have a pain pump or/and reccomend it? Even though I am on many pain med's my pain # is usually a 7-8 in the warm month's and a 9-10 in the winter.
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Old 06-12-2012, 06:06 PM #13
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Default Hi Breezy

I have SSDI also. No room for dental expenses. I waited way to long to find help. I am doing the same thing you are, paying the dentist off. Please do ask you dentist for a discount. sometimes they are willing to reduce their prices for those that have trouble like that financially. I am sure you know already how expensive the dentist can be. I wish you all the best. ginnie
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Old 06-12-2012, 11:10 PM #14
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In each appendage as it spreads. at first nail growth was fast and thin nails with groves showing up against the natural grain of the nail. now .I still have the groove thing but the nails ar really thick , barley grow and when i do need to clip the crumble immediately . also splitting of the nails happen often so i am forever filing the rough edges out to stop snags... and I suffered massive hair loss in lower appendages, and my hands. these parts used to be very hairy now i see little to no hair.. and swelling is very bad. my wedding ring no longer comes off my finger is starting to look like the trunk of a tree that grew around a rope or wire...
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Old 06-13-2012, 05:23 AM #15
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Quote:
Originally Posted by alt1268 View Post
My toe nails started changing last summer. They went from clear to dark yellow almost overnight. Just horrible looking. This winter when I started taking vitamins they started to clear up and I started walking again. Still have burning pain, but not the pain I had.
Wow Alt, that is great that you are doing so much better!!!!!!!!!!! I remember those desperate days when you wondered if you would be walking again and were considering a spinal cord stimulator as a last ditch effort. I am so happy that you are improving!!!!!!!!! You might just be following along in Catra's footsteps!!!! Hope so! So happy for you.

So happy those ugly nails are gone!
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Old 06-13-2012, 08:23 AM #16
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I'm still on the calendar for a scs trial. However it has been postponed 4 times because of wc delay in approving. My believe is that God has a bigger plan for me and that is why it keeps getting postponed. Anywho. I have been taking lots of vits. C, calcuim, fish oil, (most important "Alpha Lipoic Acid" suppose to be good for nerve regeneration) Don't get me wrong I am still on my pain patches, and still have burning in both feet . But the color change, temp. change and nail changes are now minimial. Thank you Jesus!
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GOD help me be faithful in the midst of my suffering. Alt1268
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