Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 07-27-2011, 02:36 PM #11
SandyRI SandyRI is offline
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Originally Posted by elijjennings View Post
Thank you for these posts, hearing more about the treatments, and the success. I'm really nervous, but so excited to get some relief.
Good luck Eli. I have also done very well with ketamine, I'm not perfect (i.e. - I don't do as well as Dawn), but I'm so much better than before.

Ketamine was my miracle....it got me back on my feet and back to work 2 months from when I started the 10 day outpatient protocol. Its been a little over 15 months and I'm still here behind my desk...

Check out the FB page called Ketamine Klub for a lot more information.
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Old 07-27-2011, 09:30 PM #12
elijjennings elijjennings is offline
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Originally Posted by SandyRI View Post
Good luck Eli. I have also done very well with ketamine, I'm not perfect (i.e. - I don't do as well as Dawn), but I'm so much better than before.

Ketamine was my miracle....it got me back on my feet and back to work 2 months from when I started the 10 day outpatient protocol. Its been a little over 15 months and I'm still here behind my desk...

Check out the FB page called Ketamine Klub for a lot more information.
Thank you so much for passing along the info. Would you mind telling me more about your 10 day patient protocol? How did the process work? It seems as if everyone goes through a different protocol.
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Old 07-28-2011, 05:24 AM #13
ballerina ballerina is offline
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would just like once again to encourage all those with reservations about Ketamine to at least consider speaking with their Doctors about it.
A little less then a year ago, I honestly didn't want to live anymore because I couldn't take the pain. My RSD began in my neck at least 7 year ago and spread from head to toe on my left side. I spent most of my days unable to function through the pain despite being on every opiod, narcotic, etc.

Since my 5 day in patient Ketamine last November, improvement was slow but steady over the winter months. I followed the protocols, has my boosters with Dr. Shwartzman and now receive them every 6 weeks with a more local Dr. and before I realized it, the pain was gone. Not down to a one or two, that happened months ago. I'm now at a zero.

I haven't felt this good in 10 years and really didn't believe I ever would again. If anyone out there is on the fence about trying it, please seriously consider it. I went undiagnosed for 7 years and it still completely turned me around. I do expect flare ups, especially come winter, but this is more then I ever could have dreamed of.

My RSD is head to toe on my left side, it been in my brachial plexus area most likely after a fall from a tree and then spread through 6 surgeries which followed, not to mention tons of icing and every "wrong treatment" that could have been done. If mine could be turned around like this when doctors said it was severe, who knows what it could do for so many others.

If you're considering it but on the fence as to whether to try it, PLEASE give it a a chance. Words really can't express how grateful I am to finally feel like I have my body and life back.

Best wishes to all,
Dawn

Best wishes to all,

Dawn
How wonderful that you found relief!

Would you mind sharing with us the plan long term for boosters. Do the boosters eventually stop?

Also, does insurance cover the cost and if so is there a limit for treatments?

I am also wondering abut a common complaint that ports must be implanted because of problems with veins. Have you had this issue?

Is my assumption correct that your doctor follows Dr. Schwartzman's booster protocol?

Thanks so much for sharing you success story!!!!!!!!!!!! Your positive attitude is infectious!!!!!!!!!!!
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Old 08-01-2011, 11:27 PM #14
Reddawn600 Reddawn600 is offline
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How wonderful that you found relief!

Would you mind sharing with us the plan long term for boosters. Do the boosters eventually stop?

Also, does insurance cover the cost and if so is there a limit for treatments?

I am also wondering abut a common complaint that ports must be implanted because of problems with veins. Have you had this issue?

Is my assumption correct that your doctor follows Dr. Schwartzman's booster protocol?

Thanks so much for sharing you success story!!!!!!!!!!!! Your positive attitude is infectious!!!!!!!!!!!
Hi Ballerina,
As far as I know, the plan is just to continue what I've been doing. I suppose at some point if I stay in remission we can space the boosters further apart but that's something I still need to discuss with my doctor.

I was just talking with a friend about getting a port. She's getting one soon and I'm realizing I really do need to do it. It's getting harder each time to do a blood draw or get an IV in, they all just roll back or there's too much scar tissue, etc. I wind up feeling awful for the nurses because they're afraid they're torturing which is kind of funny. The prick I consider a welcome pain since it usually means ketamine or a pain reliever is coming.

My doctor started off with Dr. Shwartzman's protocol and still bases his for the most part on it but he's a bit more flexible in that he tailors it more to the individual patient and what works best for them. For me, that's turned out to be a higher dose of ketamine and more frequent treatments, for now.

So far, Aetna has not paid for any of my infusions. They did cover the hospital bill when I was inpatient for 5 days but they won't pay the doctor's fees.

I'm happy to share my story and answer any questions anyone ever has. The relief ketamine gave me really was a lifesaver and I always hope that at least one other person I talk with will try it and have the success I had. I also wish for the few dollars ketamine itself costs, the medical community could somehow make it more affordable for everyone.
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