Very interesting... thank you for letting me know that. Did you get fevers? feverish feeling? feeling like you are sick all the time... I had a change in how I felt about 5-6 months ago. Either my RSD got way way way worse or I am having syptoms of something else.

Its not RSD feelingish though.. Its a different feeling when i get flared up with it... its weird. I guess its better to be safe than sorry...

Thanks so much- gives me hope that its not something else... Interesting that Dr. Schwartzman said that it wasnt lupus... Thats good news. I do know that IF it is lupus, we can still get ketamine!!! WOOO HOOOO!!!

Hannah

Hi Hannah,
Yes, no worries about the ketamine, whethernitnisnornisn't Lupus, unless something was to come back in your blood work showing you were having organ problems because of the ketamine, I doubt they'll be taking you off, Lupus or not. If anything, it would likely help with Lupus symptoms to a degree.

Lupus testing can come up with a lot of false negatives and positives whichnis why it really needs to be a collection of a few tests plus a number of different symptoms to really get a true positive. I tested borderline positive on a few systemic tests but it's not enough to diagnosis systemic Lupus. I was on medication for it because I tested positive for the skin form and that does treat all forms of it.

I did feel somewhat different before I started those meds; more tired, achy and stiffer then usual. As for fevers, I never get them but I was getting a lot of hot flashes, cold sweats, chills, etc. Honestly, it's extremely hard to say because I started Ketamine treatments within a month of starting the meds for Lupus. I did stop the Lupus meds about 5 months ago and was in remission from RSD for a few months until I got sick and had a flare up. The rash on my face did flare up at the same time so I really don't know if its RSD or Lupus but, most importantly, if it's Lupus, it certainly doesn't seem to be progressing since I'm on Ketamine!

It's frustrating as can be not knowing but when even the doctors can't figure it out, as long as isn't harming me anymore, I'll let it go.

well mine ISNT getting better with ketamine when ive had it the past 2 times... and symtoms are getting worse the more time passes. so its harming me and I am WAY too young for this. I have to worry about it and get to the bottom of it. False positive or not something is lerking in my body that isnt supposed to be there that is being dismissed. Doctors dont know everything I have learned. If this doc says nothing, I will go to another until i feel better. The rsd fine, but this isnt my normal rsd feelings.